Recent content by Rhonda Kim

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    Why Bother?

    Roadkill, I hear your frustration. My prays are with you. Maybe it is time to ask family and friends for the help you need. Being the strong one is a great thing but people get used to someone taking care of everything and it just might not dawn on them you need the help now. Rhonda
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    Peg Tub Placement Fiasco

    Thank you all for your concern. I only heard one reason for Joe's infection. He got it in surgery. They talk as if it can be a common thing to get celulitious after surgery. I am not sure so I plane on listening and asking more questions. As far as all the complications with the PEG it's...
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    Peg Tub Placement Fiasco

    Hi, For those of you that read my post 2 plus weeks ago. My husband had his PEG put in last Thursday. It went ok but they had to keep him overnight he throw up several times and the tubu hurt so bad he could hardly move. He went home on Fri but started a fever right off. When I called...
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    How to help someone that doesnt seem to help themselves!

    Gelthling, My husband is just 53 and this is so hard on both of us. I understand you venting. His FVC breathing test is down to 22%. He just had a PEG put in Thursday. The surgrey about killed him. They had to keep him all night and now that he is home he's still sick and doing nothing for...
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    Trache and vent costs and insurance

    Brian So sorry about your loss. My prays are with you Rhonda
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    How to help someone that doesnt seem to help themselves!

    Hi' Gelthling Sorry to here your Mums not working with you. My husband makes me feel the same way sometimes. He was sick too weeks ago so I put all his meds together for the week for him. Now he tosses his pill holder at me. I said what now its my job. I love him but it seems like...
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    How to help someone that doesnt seem to help themselves!

    Hi' Gelthling Sorry to here your Mums not working with you. My husband makes me feel the same way sometimes. He was sick too weeks ago so I put all his meds together for the week for him. Now he tosses his pill holder at me. I said what now its my job. I love him but it seems like...
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    Peg and fvc is in the 20

    Thanks Kylisa, So Sorry to hear about your Mom. I lost my Dad 3 years ago of Bone Cancer. I still miss him but I know he is here watching over us and waiting on Joe. He loved him like a son. Thanks for your imput It has helped. I guess I'm scared. My prays are with you. Thanks Rhonda
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    Peg and fvc is in the 20

    Hi Everyone, My husband Joe is going to the Dr on tuesday for a consult for a peg. He really needs the peg. When he was first Dx they said he should make up his mind before he reaches 50% on his FVC test. That has a long time come and gone. He said flat out no peg. Now he is having such...
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    dont want to see it

    tdamess, My heart goes out to you and many prays. We will get through this I know. My husband was diagnosed a year ago June 08. I cry most every day. Then I get back to work, what else can we do. Rhonda Kim
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    At 23%fvc and is very weak

    Hi All Thanks to all of you. Joe's Dr upped his zoloft and it does seem to be helping. He is also going in for a consut for a peg tub on tuesday. He said at first he didn't want it but he has chocked so much he has changed his mind. Thank you all again for your concern it helped alot.:roll...
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    Question About ALS Progression...

    Hi Colll-Root My husband was diagnosed june 08. He seems to have very stead progression. There do seem to be plateaus but it only last for a week or two and it starts again. It most likely never really stops. I read once that a person doesn't feel changes in there body until the change...
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    Aspiration or just the flu

    Hi, Gelthling My husband does the same as your Mom. He eats what ever he wants even if it is chocking the heck out of him. He ended up in the hospital last XMas with pneumonia and conjestive heart failure. He had already taken two rounds of atibiotics. Finally, after 2 and 1/2 days in...
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    My brother passed 7/18/09

    Hi, Ellie My condolences to you and your family. Rhonda
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    At 23%fvc and is very weak

    Hi Zaphoon Joe is on zoloft and lithium. I said he might want them to up the zoloft but he said it makes him feel cold or a lack of feeling with what he is on now. I guess if I was breathing like him I would feel depressed too. Thanks for the imput. Best Rhonda
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