Recent content by rhiwoman

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    Portland, OR- amazing lift and fancy wheelchair

    Sit to stand lift- (similar to this pic- http://www.phc-online.com/Stand_Up_Lift_p/invacare_rps350-1.htm) This was a lifesaver for our family. If we had it sooner we could have prevent a serious back injury to one caregiver. Allows easy transfers to wheelchair, reclining chair or toilet (works...
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    Dodge wheelchair minivan

    1998 Dodge Caravan Sport with less than 38,000 miles. This van has an IMS conversion. This van is much nicer than some of the full sized vans which only have space in the rear for a wheel chair. With this van somone in a wheelchair can ride up front or even drive. The van features alloy...
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    '98 Dodge IMS Wheelchair Van- great shape

    1998 Dodge Caravan Sport with less than 38,000 miles. This van has an IMS conversion which consists of lowering the floor 11", adding a passenger side power door opener and automatic ramp, kneel function for lower angle of entry, dual removable front seats, and hand controls (which can be...
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    Wishing for a crystal ball (if not a miracle)

    Alsventer- I can't imagine how hard this must be for you. It is so hard to be pulled in multiple directions and having it go on for years sounds simply impossible. I started this thread on Monday, Mom passed away on Friday. Despite all the suggestions on this site to get a feeding tube, get a...
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    Tips for head mouse and no movement for clicking?

    My mom has a Dynavox from Hospice. The dates on the machine put it at about 9 years old. She uses a head mouse and since she has no movement for clicking she has to use dwell to click. She is endlessly frustrated with her machine and not able to use it effectively enough to communicate her...
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    Wishing for a crystal ball (if not a miracle)

    Thanks for your responses. Especially you, Laurel. My mom is on Hospice and has been for about a year. They say she is exempt from the 6 month rule and as long as she continues to get worse they will continue services. That doesn't seem to be a problem. On the other hand we haven't seen her...
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    Help - Where do PALS sit all day

    My mom spent most of her time in a recliner, day and night, for about 18 months. She liked it because until she lost the very last of her limb movement she could adjust her own position (she has the power lift type). She would spend a few hours in her power wheelchair each day. Once she was too...
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    Wishing for a crystal ball (if not a miracle)

    My 62-year-old mother was diagnosed in Jan '08. She was sure she wouldn't live to see my second baby (born 5/1/08) but she has hung in there. Now she only has a little movement of her head and is having trouble getting any food or drink down. She doesn't want any artifical feedings or a vent...
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    Falling apart

    My mom is enrolled in a hospice program. They provide bathing assistance at home (but only one person, she needs two helpers to bathe), a weekly nusring visit, accupuncture, meds, etc. Hospice is also responsible for the horrible respite facility, they made arrangements and we assumed they would...
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    New to this and looking for friends who understand...

    Amanda, you probably aren't reading this anymore but just in case I wanted to say that I am right there with you. I have two children, one born before mom was sick (now 3.5yrs) and one born in May, 4 months after she was diagnosed. We knew mom was sick though and considered waiting to have a...
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    Falling apart

    My mom has advanced ALS and I have learned that things can always get worse. I am not my mom's primary caregiver, in fact I don't do that much hands on stuff with her because I have a 3-year-old and a 9-month-old. I feed her when I'm around, buy her foods and drinks she likes, take care of phone...
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