retiredmus2010
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  • I taught in Wicomico in a classroom setting for only 3 years, and then was a home/hospital tutor for ages. Were you also in Wicomico? My school was at the time both Vo-Tech and Spec. Ed. I had primary aged emotionally challenged kids. And Ginger, I stopped the tutoring one year too soon to get Medicare--but it's all worked out fine. Have you contacted Teri Clayton about the bed? She has really done a great job for me with the loan closet at the ALSA. Someone drove over with it from the loan closet in Baltimore and set it up.
    More site information, Ginger... See the blue bar above your name? Words are in white, click on "search", and type the word in. When you find a good post, scroll down the page to read a list of similar threads. If you search "Start a Thread", look for my user name and there should be instructions anyone can follow--I taught special ed, and tend to break things down all the way. You can begin a thread that way to try to find specific information, and the list of similar threads should be auto-generated when you scroll down your page--or will be after someone replies.
    Hugs--
    Ann
    Thanks, Ginger. If I remember right, your PALS is about a year into a feet-up presentation following a pretty average timeline.

    Probably your ALS team at Hopkins can get your Durable Medical Equipment delivered in just a day or two, but of course, you'd be stuck with some bills.

    Your husband, I calculate was born in 1942 and so probably didn't serve in any wars, and has probably not been adjudicated as "service-connected" for any conditions. This is important, so let me know if I'm wrong.

    The VA outpatient clinics would not know squat about ALS or your eligibilities, so you might get the Baltimore VA doc's at the MS clinic to advise you on where to get VA-paid care.

    Best case: the Baltimore VA prosthetics department will deliver a Joerns bed with an alternating pressure mattress just as soon as your VA PCP enters the request into their computer system and the chief of neurology approves it.
    Ugh--just lost a long letter to you. My bed is Invacare, fully electric with an innerspring mattress--through the ALSA. I strongly recommend an adjustable alternating air overlay--as muscle is lost, it can keep him comfortable. Invacare makes it, also.

    We made out fine--some power outtage, but nothing serious here. I'm sorry your husband is going downhill so fast. Must go for now. Hugs, Ann
    I wonder if we have met at the clinic at PRMC! I guess not, though--my last clinic was 2/2011, and I'm in hospice now. To write to me or to anyone, click on their name (underlined and in blue), to get to their profile page--or click on "view conversation" below a message to reply while having the message still in view.

    My sympathy, Ginger, for your own husband's illness.
    Going through a dilemma here. Wheel chair salesman says he can get a bed for my husband but he only works with invacare. Not sure about that brand of bed, especially since there will be a co-pay through medicare; I am now going through the VA and would like to ask them about the Joerns Ultra Care. Our VA in our little town is not really up to "snuff". In fact, I had to actually tell them about ALS benefits because they had no clue. I also work with the PVA in Baltimore and she enlightened them SOOO.... Husband of course could have used the BED last week already. He is having difficulty turning himself in bed. So new to all of this..... the paperwork... (trees are dying here) the emotional aspect of this humbling disease and just everything.... I feel sometimes that I need to go overboard in research, and tell my self, 'Choose well, Ginger, because you are making irreversible decisions. Sorry to ramble.... I am new to this site also... not sure how this site works...
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