Recent content by Resalder

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    Communication for Fully Paralyzed Patients

    I don't know this patients personally. I saw them on Facebook groups. But i don't think there were any other movement because these patients were on late stage and they were using tracheostomy. Caregivers were asking after their patients lost or started to lose their controll of blink and eyebals.
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    Communication for Fully Paralyzed Patients

    Hi. I don't know if i write to correct side of forum. But i have a question. Is there any way to communicate with fully paralyzed (including eye movement) ALS patient? Some patients suffer from this and i didn't hear a solution. Some on reddit talked about Neuronode but i don't know much about...
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    19 and fearing from familial ALS

    Thank you for your response. Neurologist did EMG to my left leg, and right hand. Because twitching was just happened on leg, and i talked about right hand. He didn't test my left hand. My doubt comes because of that. They did test my mother but we don't know the gene yet. All we know is it...
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    19 and fearing from familial ALS

    Hi. My families story with ALS started 20 years before, with my grandfather's death from it. We didn't think it was familial because he was the only one. 2019 August, my mother caught up this disease and disease progressed rapidly in this time. She is now at hospital for feeding tube operation...
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