Recent content by Reedy22

Hello all, Just wanted to come back and share my results. After my last neurologist appointment he referred me to a neuromuscular specialist for his opinion on my tongue fascics. The Dr.'s name was Aziz Shaibani of the Nerve and Muscle center in Houston, and he was very smart. He checked all...

Hello, I know I said I wouldn't post here anymore but I saw the Neuro today and wanted to update. He said my EMG was normal, the NCV showed conduction delays in the left hand and left lower leg (the two areas im having symptoms). He did a quick little run through to see if he could find the...

Hello, I am not diagnosed with ALS. I am an anxious person worried about ALS, like you. I have a twitching tongue that I can trigger just like you. I stick it out, and return it to a resting position at the floor of my mouth, and I watch it twitch away for about 5 seconds, like clockwork. I...

Nikki J, after a quick google search I found this email from Dr. Turner. Wow, I'm relieved. There was another, Dr. Anthony Geraci who stated that the only true cause of tongue fasciculations was ALS. I cannot believe an experienced neuro with his credentials would say that. Because even if...

Nikki J, would you mind showing me where he clarified this quote? That's something the people on the BFS website need to see because it's terribly misleading. I know many people that have gone just about mad because of that quote. Also, I posted anther reply detailing my questions about the...

Nikki J, it seems you've removed my thread regarding fasciculations of the tongue and their clinical significance. Forgive me for creating a separate thread. You're probably the only one who saw that thread so would you mind addressing that? For those who didn't see it, my question was this...

Atsugi, Hello again I believe you were one of the members of great help to me about a year ago, when I came on here with concerns about a weak left leg, some slight limping, and some sensory symptoms. You told me to have my back checked out, I did. My MRI was clean, no impingements. Doc said...

If it's too much to ask please say so but would you mind explaining to me why it points away and what a delay in NCV even means? I want to better understand as it would go a long way towards bettering my mental state but I can't seem to find any good explanations on the web.

So it means I do have something, but it's not ALS?

Saw the neuro who performed an EMG/NCV and all he said was he needed a day to look over the results, but did tell me that there was a slight delay in nerve conduction velocity. What does this mean? Is this something that points towards or away from ALS? Or is it not indicative either way...

Quick question... Does ALS Cause Afferent Pupillary Defect? I just got back from the Neuro and he noted this as well as the absence of a plantar response. Is this something ALS causes? He said he suspects MS, so I have many tests to undergo. But I did want to know if ALS can cause this RAPD, so...

SC Featured: Pete's Challenge - ESPN Video - ESPN here it is!

Tune in tomorrow! ESPN is doing a feature on ALS patient and former Boston College baseball star Pete Frates. He's the man responsible for the ice bucket challenge going viral, which most of you know. Should be an interesting feature! And anther major exposure to the general public for ALS...

Most recent donation stats say $9.5 million from 184,000+ first time donors.

Read today the numbers are now upward of 4 million in donations and that number is only going to grow. Pete Frates challenged CEO's of Fortune 500 companies to donate $2 million.