My Mom refused any tubes also, at the beginning, I had a very very hard time with it, but near the nd I understood.. Mom kept saying.. why would she want to live longer with this disease.. Mom faught right to the end.. but did it without the tubes.. I think we need to listen more to the one's...
Mom had us and the staff of the nursing home washing her mask and equipment each and every use with Ivory soap.. She would have us wash it, dry it, and hang it on her lamp for the next use.. the would have us take apart the tank where you put the distill water, and wash that with ivory soap..and...
Pam.. I am very sorry to hear about your Mom's diagnosed..This forum has alot of your answers and alot of support.. I am happy you have found this place..and your Mother and you will be in my prayers..
Sorry for your diagnosed sigma.. but you have truly found a wonderful place.. this place and members like you are the most supportive and caring individuals..Sorry why you are here.. But happy that you are..
Welcome Nikki.. Sorry to hear of your Dad's DX.. But the best advice I can give you, is this the place to be while going through this with your Dad..You can get idea's here, plus lean on us when things get rough..