Recent content by razberri

  1. R

    PALS relative - Hello!

    Toto, (that was the name of my cousin's dog! haha) my cousin doesn't speak english, so she wouldn't be on here. A shame, because it's inspiring (in a sad way) to see so many other PALS all joining forces and offering support to each other. Al, my cousin uses sensors on her glasses. She can't...
  2. R

    Tristem

    I sent ALS Untangled a request to look into Tristem a while back but no news as yet (that I'm aware of). I'll check out those other trials!
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    Tristem

    Has anyone here heard of Tristem? They claim to use a new process of 'retrodifferentiation' to convert a patients own blood cells into stem cells, which can then treat several diseases, including ALS. I'm should I be sceptical or hopeful?
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    PALS relative - Hello!

    Hello! I thought I'd join hoping to find out more about this disease and how people cope with it. My cousin got sick a few years back and, a few years later, finally heard the diagnosis of ALS. She's now bed ridden and not speaking, but can breathe on her own and, most importantly, can still...
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