Toto, (that was the name of my cousin's dog! haha) my cousin doesn't speak english, so she wouldn't be on here. A shame, because it's inspiring (in a sad way) to see so many other PALS all joining forces and offering support to each other.
Al, my cousin uses sensors on her glasses. She can't...
Has anyone here heard of Tristem?
They claim to use a new process of 'retrodifferentiation' to convert a patients own blood cells into stem cells, which can then treat several diseases, including ALS.
I'm should I be sceptical or hopeful?
Hello! I thought I'd join hoping to find out more about this disease and how people cope with it.
My cousin got sick a few years back and, a few years later, finally heard the diagnosis of ALS. She's now bed ridden and not speaking, but can breathe on her own and, most importantly, can still...