Recent content by rascal

  1. R

    Just diagnosed yesterday

    I wish I had no pain they need to do further research on the pain like actually talking to those of us who actually live with pain ..I am truly happy for those who can report no pain but I don't believe I am the only one with this that has pain.I have yet to be scheduled to see the specialist so...
  2. R

    Just diagnosed yesterday

    Hello IhavePLS, It's nice to meet you despite having to meet you here, and yes the diagnosed is PLS really I am trying to wrap my head around all this. I have thought I had PPMS for nearly 4 years now a real long story of being misdiagnosed thru SS but that will take a long time to explain...
  3. R

    New chair advice?

    TY Brian Oh wow I am trying to get all this in my head still as just diagnosed with PLS a few days ago, I had no idea that I would be needing all this special equipment when I went to the therapist.my diagnosed neuro wants the neuromuscular specialist to go ove all the details of what this...
  4. R

    New chair advice?

    TY all for the comments so far.am hoping I get a really good dme that will go over all the options with me.
  5. R

    New chair advice?

    not really sure where to post this so am trying it here I had a wheelchair eval with a therapist she has sent orders to the medical supplier and I will go get fitted for a power wheelchair she is ordering a medicare group 3 I am not really sure what that is so if any of you use one I would love...
  6. R

    Just diagnosed yesterday

    Hi all sorry I forgot to put my DX in my first post it is primary lateral sclerosis, I have been in limbo for a few years now finally got a great neuro that worked through many test's to finally get a real diagnosed and a couple of pills to help with symptoms mostly the spasticity,he is...
  7. R

    Just diagnosed yesterday

    Hi All, I am new here and wanted to introduce myself after over 3 years I now have a diagnosed I will be seeing a neuromuscular specialist in a month or so I really do not know much about this yet, so hoping to put together a list of questions I should ask any help on that would be appreciated,a...
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