Recent content by Rainbow5

  1. Rainbow5

    Testing underway; kinda angry; purposeful resilience

    And of course, constant, constant pain.
  2. Rainbow5

    Testing underway; kinda angry; purposeful resilience

    I'm not as worried about the reflexes; I am, on the other hand, concerned about the weakness, falling, and trouble walking. And the increased "wobbiliness" - don't know what else to call my legs. When I walk, I feel very unsteady and walking straight is hard. I cannot balance at all on either...
  3. Rainbow5

    Testing underway; kinda angry; purposeful resilience

    (I forgot to add that I have super brisk reflexes and Hoffman's sign and something else that I forgot). But after tripping, falling, pain, and now serious walking and balance issues, I went to my internist who sent me to a neurologist (I have seen neurologists all my darn life with the...
  4. Rainbow5

    Testing underway; kinda angry; purposeful resilience

    Hi - That must be scary about finding lesions. Glad that your sister has been functioning well, and that is super exciting about the baby. What are next steps for you?
  5. Rainbow5

    Testing underway; kinda angry; purposeful resilience

    Hi all, Thank you for reading this - it means a great deal to know that folks are out there willing to provide support. This is not my first time in life with health issues. I have successfully experienced, with purposeful resiliance -epilepsy (since 12, well controlled) a fall down the...
  6. Rainbow5

    Avoidance for too many years

    I get it. Hit quote and then reply!
  7. Rainbow5

    Avoidance for too many years

    How do I reply to each person?my first reply was to Janie h.
  8. Rainbow5

    Avoidance for too many years

    I'm sorry to hear about this. It Is very similar in my case. From feeling pretty good to very unwell. Thank you again!
  9. Rainbow5

    Avoidance for too many years

    :? I have alot to learn. I appreciate the information... I have not made the appointment yet. With my epilepsy I have seen neuros. all of my life. This involves seeing a specialist in motor issues but I think I need to take care of it. Quick follow up - when you are sick/laid up with the...
  10. Rainbow5

    Avoidance for too many years (posted in wrong forum initially)

    Up front i thank anyone who patiently reads emails like mine. I had breast cancer(5 years cancer free double mastectomy) and remember looking for help and generous folks pitched in and provided support. So thank you. I have been avoiding a diagnosis and could use some advice. I will explain...
  11. Rainbow5

    Avoidance for too many years

    Thank you for your reply. I wonder did I need to post in another area as well cuz my leg pain and weakness is horrible. Is PLS mostly upper body?
  12. Rainbow5

    Avoidance for too many years

    Up front i thank anyone who patiently reads emails like mine. I had breast cancer(5 years cancer free double mastectomy) and remember looking for help and generous folks pitched in and provided support. So thank you. I have been avoiding a diagnosis and could use some advice. I will explain...
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