Recent content by Rae642

  1. Rae642

    sodium phenylbutyrate

    I am slowly progressing, but my last clinic I had noticeable improvement in the length of time I could exhale, over previous two clinics. Also what little shortness of breath I was experiencing, like on the stairs, has gone away. I have limb onset, began in hands/arms, then moved to legs, then...
  2. Rae642

    sodium phenylbutyrate

    hi I have been taking both prescription Tudca and Sodium Phenylbuterate since September. It is quite expensive, and I suffer from daily diarrhea. the Tudca i order from Thesocialmedwork.com. They source medication approved in EU. A prescription and letter of intent from neurologist is required...
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