Recent content by rachlucia

How big is the portable ramp?

Paulette, I think I am going to order one of those pillows you mentioned. Some of you have mentioned the bipap being used. The problem with this is that she will only wear it during the day when she is awake. She has only been using it for the past month (despite having it for a year and a...

she unfortunately has no use of her hands. I so wish she did!

Thank you for all the feedback so far! She did actually sleep with her bipap for about 1.75 hours last night. I will take any improvement I can get. She said she is just worried because she can't make a loud noise over the bipap and is afraid that something might go wrong and she won't be able...

Nikki, She has a basic soft collar, a miami J collar, and a brace we found online ( I think called Steve's brace). I ordered an alarm last night off of amazon that is made for drivers who may fall asleep. It is supposed to fit over the ear like a bluetooth thing and is supposed to alarm when...

I need to make an appointment in August since we just saw Holland/PT/OT/dietitian/ and Dr. Appel's assistant in mid-May during mom's hospital stay. Just have been overwhelmed trying to take care of everything else and forgot! <--- the life of a caregiver lol

She is doing okay I guess. She refused to see Dr. Appel since February of 2013 then had a hospital stay the week before last at Methodist. She is no longer able to talk, move her limbs, or eat, but she keeps going. We stay busy with my sisters' ball games and will be going on a vacation to...

Hi Max, I just ran across one of your posts on here and was surprised to see that you are in Tomball. I am a caregiver for my mom (diagnosed 08/12 by Appel at Methodist) who lives in New Caney. It is nice to see that someone is sort of local to us. I am trying to familiarize myself with the...

We use Guafenasin (robitussin) 25-30 mg every 4-6 hours. My mother's pulmonologist works with the world's leader doctor for ALS and is awesome! Look for cough syrups with only this type of decongestant (only guaifenesin and not dextromethorphan).This will help thin the thick spit that gets...

I am a caregiver for my mother and have had a lot of recent issues with her head falling while she is asleep. She only wears her bipap during the day and doesn't want to wear an uncomfortable neck brace at night. When her head falls she now can't pick it up or make a noise loud enough to wake...