Recent content by QuiQui

  1. Q

    CHANCES TO GET ALS

    I wonder, in case of FALS does it always start from the same limb within the same family or not necessarily?
  2. Q

    CHANCES TO GET ALS

    Thank you. Sorry but what is NCS?
  3. Q

    CHANCES TO GET ALS

    Hi, I have just returned from EMG test. I was not given results on the spot. Doctor said she needs to process data from the first part (electro), to compare potentials, numbers etc. She will call me tomorrow to go over the results. Is that normal? Because I know EMG tests are discussed just few...
  4. Q

    Symptoms vs Precursor

    Hi! My both soles cramp every now and then for many years. Not at night but when I sit in a lotus position, or when I just sit relaxed. I also have persistent twitching in both soles (like every few seconds), slow ones, sometimes more, sometimes less, sometimes they stop for a day or so but it...
  5. Q

    Symptoms vs Precursor

    Is it known how long before the first ALS symptoms show up, EMG can show anomaly? Do we talk about months or years? Also do gym workouts with weights accelerate or slow down the decease development during preclinical stage?
  6. Q

    CHANCES TO GET ALS

    On the website of the ALS Association website it says: "A child born to someone with FALS has a 50% chance of inheriting the FALS gene mutation". Followed by: "Typically, there will be someone in each generation with ALS and/or dementia". Aren't these two statements contradict each other...
  7. Q

    Symptoms vs Precursor

    It's hard to understand for me how this study works but I would probably contribute. Where can I read about it?
  8. Q

    Symptoms vs Precursor

    It has to do with "not confirmed" symptoms so I thought here would be more relevant.
  9. Q

    Symptoms vs Precursor

    It's all pretty much clear with symptoms. When they start you already know. But I'd like to know if there are precursors to ALS. Signs that could indicate your predisposition. Something that is probably not researched enough yet. Something that people, already diagnosed with ALS, realize they...
  10. Q

    CHANCES TO GET ALS

    Then these 2 would tell us that it was only them out of 8 and we would think, ok, 6 are unaffected, that's great. But instead we only here about proportions not in our favor. Well, sorry, I am just trying to find a glimpse of hope but probably overthinking. I guess, if I don't want to get...
  11. Q

    CHANCES TO GET ALS

    That's the thing. I only hear bad stories about proportion in FALS. Like a bunch of them. Always more affected than not. No one comes and says. Oh, I had 5 sibs and just one was affected. That's why I don't understand why it's scientifically 50/50 while actually in real life it sounds like it's...
  12. Q

    CHANCES TO GET ALS

    So do you mean that even in families with 5 kids ALL may be healthy? That is every healthy kid born does not raise chances to get ALS for every subsequently born child?
  13. Q

    CHANCES TO GET ALS

    I just want to say thank you for your work here. I noticed you answer a lot of questions (I am sure a lot of the same questions) over and over, trying to cheer up people in panic and desperation. 🙏
  14. Q

    CHANCES TO GET ALS

    Hi, thank yoг for your response. This is where I am confused. Isn't it that if my mother hasn't passed the defected gene to me and my sister, it will be considered "skipped"?
  15. Q

    CHANCES TO GET ALS

    Hi! I have ALS family history. I know that my grandfather died from ALS in the age of 51. Then his daughter (my mom) died from FTD in the age of 48, her sister is healthy. Now I am 40, and I have a sister, 31 y.o. I have read tons of material about it. I know that this can pass down the family...
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