Recent content by quintok555

Hi Rictak, At what stage did your wife stop progressing? My mother has stop moving for about 5 months and her breathing is okay for now but she has the bipap half the day.

I feel this disease has changed me where I have lost all patience with my mother. I get so frustrated when I see her and I know should not because she is dying. Now I am so easily stressed and I just want to runaway from this situation. Sorry I just feel like venting.

Hi, My mother has als and she is in her late stages. Is it wrong to think that i want this to be over? I just feel so stressed seeing her like this and I am tired and I just want to continue my life. I have a 5 month old baby and a wife and I feel my life is put hold on. I just feel guilty...

I been reading a lot of ftd, I was hoping that someone can share personal experience of ftd, the early signs and the later stage with ftd.

My mother has ALS and has developed FTD. I read online that someone with FTD/ALS usually has the c9orf72 gene? And that gene is due to famillia? Please confirm because it is driving me nuts that I might get ALS in the future. No one else in my family has ALS and this past year I did not worry...

Hi, I like to know if it’s true that if a person with als who uses a bipap 24/7 will not need invasive ventilation?

She keeps moving because she doesn’t like the stiffness. I bought a temperpudic bed that auto reclines and she still doesn’t use the bed. Sometime I wonder if she developed OCD after being diagnosed with ALS. She also uses a bipap but only has it on for an hr and then she wants to move to the...

Hi, I am a caretaker for my mother and I wanted to ask if it’s normal that my mother can’t stay in one position. For example, every 30 minutes she request to be transferred from her wheelchair and to the recliner. This is throughout the day and night and it’s putting a lot strain on the...

Very small mucus, I always hear her clearing her throat. She is currently using a bipap but not all day but I can try to clean the bipap. I got a call from her general doctor today and he thinks it’s aspiration and recommends a feeding tube. I been trying to avoid talking about a feeding tube...

Hi, my mother has been coughing a lot and I wanted to know if other people experience the same problem. Most of the coughs are from an itchy throat but her symptoms are also progressing rapidly. My mother can’t walk or use her arms and her speech is almost gone. I don’t think the itchy throat...

Hi, I read online it can take up 2019 for the drug to be released to the public. Does anyone how much the drug cost if we are allowed to take it early?

Thanks for helping with my questions, i am sure I will have more questions. Regarding the B12 injection, I did not understand why the Dr would not write a prescription for me if he suggested alternatives. Do you know what is the best way to get 25 MG of B12 for injections? and does it cost a...

Re: Mom Symptons Hi, We did our follow up today with another EMG and unfortunately the specialist (Dr. Mitsumoto) diagnosed my mother with MND/ALS. Right now my emotion is high knowing that I might lose my mother within 5 years. I explained to my mother what is MND & that there is no cure...

Re: Mom Symptons Hi, thanks for the reply. We met with the dr today and you were right we didn't get a decision today and the dr wants to have another EMG. The next appointment is next week and after the EMG he will probably give his diagnosis, it will be stressful week. Hoping for the best...

Hi, My mother started feeling weakness on her right leg 7 months ago and now her leg is really weak and its spreading to her left leg. She is currently using a walker now and is very limited in her walking. At night she can't sleep well, because she gets these tingling feeling on her right leg...