Recent content by Q-man

  1. Q

    Stamina/energy

    Everything we do is labor intensive and it adds up. Naps are good. Ed
  2. Q

    New Here!

    Hi brenda welcome to the forum. You'll find lots of info and good people. Ed
  3. Q

    My peg tube experience

    i was eating pureed food and losing weight. it was time for a peg. it was put in on a thurs in feb. the next day i went home. that evening i had extremely painful muscle spasms in my back. on sat went to the er and was admitted to the hospital. muscle relaxers, pain pills, and iv fluids got rid...
  4. Q

    Been off line for over 4 months

    Been off line for awhile, now catching up. In feb had a peg put in and ended up in the hospital for eleven weeks. (i'll explain in my next post ) just want to say welcome to our new members, wish it was under different circumstances. And share my sadness and prayers with the family and...
  5. Q

    Peg Surgery Tuesday July 17

    My experience was an exception, not the normal, which i'll describe in a separate post. That being said, here are my comments. Before feeding, check the residual especially if you do bolis feeding. The nurses can show you how. Don't feed too much too fast. My gastro doc said to flush with...
  6. Q

    VA Benefits in California

    contact armando de la rosa at the los angeles pva office, 310-235-7794 or 7796. you will need a copy of your mom's dd-214. also get documentation from her dr showing the als diagnosis. also, look on the alsa.org website for veteran benefits info. ed
  7. Q

    Daughter Looking for some Guidance

    know that you can always turn to this site for info and strength. UC Irvine medical center is an official als center in case you don't already know. ed
  8. Q

    NOT PLS. Crack the wine bottle open

    this is great news! i'm so happy for you. ed
  9. Q

    Dad fell

    it can be overwhelming, and as noted above, some days are worse than others. i've discovered that it doesn't take much to lose your balance and fall. (2 times for me from reaching too far.) now i am very cautious and aware of my surroundings and what i am trying to do. luckily my beautiful wife...
  10. Q

    Kc2u2 - news update

    gina, my prayers for you and kevin. what a bunch of critical decisions in a very short time. wishing you a speedy and uneventful recovery and learning period. ed
  11. Q

    wheelchair accessible mini vans

    Does anybody have any opinions about the various systems put on the mini vans for wheelchair access? Any thing you wish was different with what you have or any other recommendations. Also, any input on what brand of mini vans seems to work the best?
  12. Q

    Reason to Celebrate

    good for you. i know first hand (also now rated 100%) it eases some of the worries. ed
  13. Q

    Asperation Pnuemonia and ALS

    Re: Scared my thoughts and prayers for God to be with both of you and give you the strength needed to win this battle. ed
  14. Q

    In continuation of "wish I'd known..."

    brooksea, the continued sharing of your battles and experiences is what i noted on my new member post. in the long run, it will help many others. i thank you. and, i am deeply saddened for your and your son's loss. ed
  15. Q

    Update on Hospice

    meg, bp may be high due to the new hospice arrangment. mine does that, then goes back to normal once i get comfortable with what the new situation is all about. ed
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