Recent content by Pumpie

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    Newly Diagnosed

    he does very little excercise. basicallly has a hand flexor which he loves using for an hour each day while watching tv and then a resistance band that he used fro his arms to do 15 reps of 3 sets. and a walk a day. that is it. we are not encouraging anymore excercise.
  2. P

    Newly Diagnosed

    yes pearshoot, my family and I are now in the camp that are only relying on homeopathic stuff. having read about the protocol, i think given what my mother already has to cope with, it was just too much of a commitment and I think wouldve negated on my father's quality of life. So he takes...
  3. P

    2 days since being diagnosed

    Also I would like to add, that giving dad homeopathic medicines 4 times a day makes us feel like we are doing something. It is very hard to accept and sit back and do nothing. And so if it is a fruitless cause, it is indirectly helping us feel less useless than we already do.
  4. P

    2 days since being diagnosed

    Pearshoot this homeopathic doctor like a father figure to me , he has not charged me any amount and a years supply has cost £100 which in the grand scheme is nothing in comparison to what we have spent on other vitamins . He has guaranteed that it will work on my fathers FTD dementia ... So far...
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    2 days since being diagnosed

    I understand what you are saying Ottawa Girl, but my fathers situation is different. I recollect mentioning to my brother one day that dad's brain had shrunk beyond his years per the MRI that was taken. My father over heard and he sunk into depression. There are other episodes since then to show...
  6. P

    Newly Diagnosed

    Hi Paul sorry to hound you. do you know how I can find out exactly what I need and how much of each thing , and when its to be taken for this protocol? that would be great thanks so much
  7. P

    Newly Diagnosed

    Paul , did you have any muscle wastage ? Did that at all improve ? I'm hoping there is something in the protocol that helps muscle wastage . Thanks so much
  8. P

    Newly Diagnosed

    Paul how can I get to know what protocol you're on ? As my dad has little strength in his fingers and I would love to see some positive change there. If you cam assist at all that would be great .
  9. P

    Nutrition, vitamins and herbs

    Yes health food store , it's very important to fulfil the requirements that's it's Organic extra virgin cold pressed coconut oil . I bought a pretty significant bulk of it , will start that next week when dad cones back from india .
  10. P

    Nutrition, vitamins and herbs

    I've tried a heap if vitamins no change yet which I regard as a good thing. But there are some homeopathic stuffs that my dad has started especially to deal with FTD, apparently it takes 30-40 days to kick in , we are still waiting - will keep you updated !
  11. P

    2 days since being diagnosed

    It breaks my heart t hear that my dad is crying. Given he is also is denial that there is anything wrong with him and the nuero' thinks thats a good thing, we havent told him he has als. and we are probably not going to tell him. he will lose hope as at the moment he walks upright like a...
  12. P

    2 days since being diagnosed

    Just a wee question please. My mother says that my dads starts to cry out of nowhere , remembering old occurences. Is this a sympton of ALS too? as it has been mentioned once to me before. But Im not entirely sure how it could be linked to a MND. thank you
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    How accurate are EMG's?

    I guess i am wondering the same. For the moment at least I am hoping that they are wrong. My father was diagnosed with ALS on 19th Feb following an EMG (where the results are pasted on this forum). I chucked every single disease i could back to the neuro and he said definitely not any of those...
  14. P

    2 days since being diagnosed

    Mum and dad went to see a homeopathic doctor. My dad has become withdrawn, and doesn't speak that much anymore in India. Anyway the doctor prescribed these Nerve Tonics. My mother is monitoring the change ALSO! Dad couldn't get up off the bed without a push., now he does that alone. Fingers...
  15. P

    2 days since being diagnosed

    So my father is in India at the moment and has so far seen two nuerologists. the last one a MND specialist, head of the hospital department. so what he says is that dad has ALS, but not the severest form and that there are different types of this disease and that there is no treatment for it...
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