Recent content by Psychstudent92

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    Update

    Hi everyone, Hope you’re all keeping as well as possible during this time. I just wanted to give a quick update, I had a neurology appointment for June but was cancelled so I had an over the phone appointment yesterday. The neurologist said the results show; I had a normal MRI and a normal...
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    Hey Ben, i’m as well as can be I suppose. Thanks for asking, I’m trying to push on and keep busy...

    Hey Ben, i’m as well as can be I suppose. Thanks for asking, I’m trying to push on and keep busy with college work to keep my mind off it but the twitches are like constant reminders and then I find myself back here lol. How are you? Hope all is good?
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    Hi, I am sorry for what you are experiencing, I know how worrying it can be. The only thing that...

    Hi, I am sorry for what you are experiencing, I know how worrying it can be. The only thing that gets me through this is looking at other possibilities. I have pasted a link of a paper of mimics of ALS, I read it when anxious, hope it helps, take care! (PDF) Mimics and chameleons in motor...
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    Haha yeah I have heard the saying before alright, usually more so from tourists though lol...

    Haha yeah I have heard the saying before alright, usually more so from tourists though lol. Don’t know where it comes from (must be the leprechauns) the Irish are more firm believer’s in you make your own luck.
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    The muscle biopsy is not a bad idea either, have you done much research into polymyositis? Can I...

    The muscle biopsy is not a bad idea either, have you done much research into polymyositis? Can I ask if you have trouble with speech? Not slurring or anything but like a strain in chest muscles and throat easily fatigued? I’m trying to ignore It and put it down to worry but the more I think...
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    Tell me about it, it’s very frustrating. Although you’re experiencing symptoms a lot longer so...

    Tell me about it, it’s very frustrating. Although you’re experiencing symptoms a lot longer so can’t imagine how you’re feeling. You seem to be very proactive in researching your own answers which is great! Aw no sorry to hear not much came from the telehealth app, I suppose staying in touch...
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    Thank you for saying that! Same goes to you hope you start getting some answers soon. Have they...

    Thank you for saying that! Same goes to you hope you start getting some answers soon. Have they giving any suggestions to what it could be for you? Luck of the Irish 😂 you must be joking if it wasn’t for bad luck I’d have none
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    Yeah I think one is enough for me. Hoping it’s my last one. Sorry to hear your next EMG was...

    Yeah I think one is enough for me. Hoping it’s my last one. Sorry to hear your next EMG was cancelled, it’s such a bad time to be experiencing any health problems. I’m sure you were anxious to see was there any further progression. I hope the appointment went well today though?
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    yeah that’s very true, it is all looking positive at the moment so trying to keep the chin up...

    yeah that’s very true, it is all looking positive at the moment so trying to keep the chin up. Its just so frustrating not having a reason for my symptoms too as I’m sure you know yourself by the sounds of it.
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    I will of course and same goes to you! To be honest I put it down to anxiety and stress myself...

    I will of course and same goes to you! To be honest I put it down to anxiety and stress myself at the start. I think the only thing that points away from that for me is the confirmed atrophy lol. Though that still doesn’t mean it’s ALS or MND. By the looks of on here it seems very seldom that...
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    Well it’s all a great sign that some of your symptoms are easing. You seem to have the right...

    Well it’s all a great sign that some of your symptoms are easing. You seem to have the right attitude with it all and trying to stay positive is all anyone can do really, for ourselves and loved ones too! Especially during these times, I hope it continues to improve for you.
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    Yeah me either. I’m just going by what I’ve seen on this and other research. I actually thought...

    Yeah me either. I’m just going by what I’ve seen on this and other research. I actually thought it would be the neuro doing them and I’d walk out that day with results lol. I might try ring tomorrow and see what her secretary has to say.
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    I’m hoping it’s a good sign with regard to ALS, but symptoms are still progressing. I’m in...

    I’m hoping it’s a good sign with regard to ALS, but symptoms are still progressing. I’m in Ireland and on public healthcare so it’s not the best. I was lucky to get the apps as quick as I did. How are you? I don’t envy you getting 5 EMGs, not a pleasant experience I must say.
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    Hey, I’m not sure really. I was sent to a neurophysiologist by the neuro, he said couldn’t give...

    Hey, I’m not sure really. I was sent to a neurophysiologist by the neuro, he said couldn’t give results that he would go over them and send them to her and I’ve heard nothing from either since. I have an app in June with her so maybe she waiting until then to give results for that and nerve...
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    Around Feb, I started getting cramps and twitches in toungue and throat. lately I can’t speak...

    Around Feb, I started getting cramps and twitches in toungue and throat. lately I can’t speak for long without getting extremely fatigue, fam have noticed this with volume but no slurring! He was a neurophysiologist, I’m assuming that’s kind of the same thing? I was sent by the neuro, I had been...
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