Recent content by pscheffel

That is such a blessing they will be staying with you. I lived 5 minutes from my parents but still felt like I wasn't there enough and I went everyday at lunch and on my way home from work. My Mom also had bulbar ALS and FTD. It's so difficult to know what and how they are thinking/feeling. Hang...

I am glad she decided to go for it! I believe it gave my Mom and us relief and she was able to live more comfortably for a longer period of time. It's a hard decision, but well worth it.

Very sorry for your loss.

Hello dfinch22, it was my Mom who had ALS, she stopped the Rilutek because it was so expensive. But we were willing to pay for it, however, she was noticeably progressing while taking it and I don't think the speed of the progression changed when she stopped. So we made a family decision to...

Hi Kim, I am very sorry to hear about your divorce. I hope you are okay and have supportive family and friends. I haven't been on in so long, keeping busy, but always have my Mom, this forum, and ALS on my mind. My family is doing well, kids are growing and keeping me busy. My Mom has been gone...

I am so sorry for your loss, time only heals.....take care.

This is nice!

Hope you are doing good!

Amy, I feel your pain in every way! It's not been quite 3 months since my Mom passed away....I miss her terribly! One day at a time is all I do. Vicki, that is an awesome quote! Patty

Jenn, I am so sorry to hear this. God bless you.

We stopped the Rilutek, progression remained unchanged. I am so sorry for your sister and family.

Angela, I tried getting my Mom to go to some functions, but she didn't want to. So I came here instead, still thankful for this group! God bless.

Chris, my Mom had Bulbar ALS. The muscles start to atrophy (waste), in her case it was mainly in her upper body, face and arms. I think a bipap is essential for comfort. My Mom didn't want to use one, but when she developed bronchitis, she was forced. I am truly sorry you are going through this.

That was nice Elaine. I am sorry for your loss msdave.

I too am sorry for your loss, I pray for a cure soon.