Recent content by Prohobo

  1. Prohobo

    Guilt

    I can't help but feeling guilty - massively so. We were so late in finding the diagnosis - even after 3 neurologist. It progressed so fast and I was blinded to anything serious. As it progressed quickly I was foiled at every turn: Took time to get certain meds, time to get a peg tube, time to...
  2. Prohobo

    A Joy to the World!

    My mother, as Michigan State grad, was also a huge NCAA basket ball fan. Every year she would fill her bracket and watch. This year - we helped her fill out her bracket, as it was hard for her to write. The TV has been on non-stop as she watches the games. Last night - we watched our last game...
  3. Prohobo

    Bad and Awkward situation.

    My mother passed this morning at 6am.... https://www.alsforums.com/forum/memoriam-memory/28601-joy-world.html
  4. Prohobo

    A Joy to the World!

    My mother's name is Joy, and she certainly lived up to her name sake. It is with great sadness to share my mother has passed this morning peacefully at 6am (ET) from her battle with ALS (bulbar). My mother was an amazing woman. She became a school teacher and taught at Douglas MacArthur High...
  5. Prohobo

    Mom just diagnosed

    I just went through this as a son. I actually knew (as her POA) for almost a week before she was told by the doctors. My mother's case is very advanced (no longer talking and can't walk) - however, being together and focusing on life and love is what is helping us get through this. Plus lots...
  6. Prohobo

    Bad and Awkward situation.

    She was sad yesterday, not because of the ALS but she is a avid March Madness fan (watches it every year) and her alma mater lost to Wisconsin. She is a Spartan! We are discussing Hospice this week - which is a hard discussion for us all.
  7. Prohobo

    Bad and Awkward situation.

    Today (3-12-2015) at 10:30 am was the worst day of my life. I have known for a week that my mother had ALS as her POA - but today was the day to take her to the Neurologist for her to get the diagnosis. It was good it was just my mother and myself. It was hard - but she wants to move past the...
  8. Prohobo

    VACATION question

    @Nikki - Can I get over the cost (not refundable or change the date) - sure, it hurts - but I can manage. We have been saving for a long time and planning this with our son, who is also training for the trip. My mother, who I am close with - loves the trip and excited for us. We had talked...
  9. Prohobo

    VACATION question

    @skipper, I should emphasis this is as much for my son (10 years old) who is training for this trip as it is for the family. Ironically he is suppose to come up with fund raising effort for awareness of a charity for his trip - he had initially choose animal adoption, however with the current...
  10. Prohobo

    VACATION question

    As I am new on here and just posted that we found out my mother has ALS (fairly advanced - no longer talking and barely moving) it has certainly changed a lot for me. I have already canceled a business trip this week and cleared my calendar to be with her as we go through this. However - I have...
  11. Prohobo

    Bad and Awkward situation.

    I contacted the MDA clinic in Sarasota - the next visit for PALS I could get my mother into is JULY. I am not sure we have that long. Next support group is in MAY. So it was of little help. I did contact ALSA as well - sent an email, but nothing back yet. So far these forums (sadly) have been...
  12. Prohobo

    New to This

    I have been with my mother ever night and on the weekends since she has been in the skilled nursing facility. I am working with the businesses so I can work remotely when needed - so I can be with her. She is currently in skilled nursing (rehab) as she had suffered a fall and is covered under...
  13. Prohobo

    Bad and Awkward situation.

    I have rented a medical transport for her to visit with her original neurologist this Friday to give her the diagnosis. She is currently staying in skilled nursing, under medicare (for rehab - as she was admitted after a fall with no diagnosis). I was told by the Dr late yesterday as soon as she...
  14. Prohobo

    Posts not posting

    TY - Is all my posts moderated before posting or just some. Is there something I should do? Regards, Michael
  15. Prohobo

    Cheated by US and VA

    The advantage of being in a Territory, like Puerto Rico, you are not subject to the same IRS tax. For those moving to Puerto Rico to become residences there - only pay 4% in taxes. You CAN vote for the President in the Primary Election, not the General. But since you can't vote in the General...
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