Recent content by probablycrazy

  1. P

    Exactly. No worries about ALS. Huge difference from 9 months ago when I lost 8 kg from worrying.

    Exactly. No worries about ALS. Huge difference from 9 months ago when I lost 8 kg from worrying.
  2. P

    No I have not. I haven't followed up on the lesions in my brain as I have no neurological...

    No I have not. I haven't followed up on the lesions in my brain as I have no neurological symptoms (other than mild twitching). When they were discovered, my local neurologist recommended a follow-up MRI with contrast, but the ALS neuromuscular neurologist saw the lesions as no concern. My GP...
  3. P

    RE: My Experience With Twitching

    previous thread that is now locked I wanted to give an update. My twitching has significantly subsided and I now look back on my "scare" in early 2019 with some shame, mostly incredulous as to how I could have thought I had ALS. When the appointments and tests did not allay my concern, I...
  4. P

    My Experience with Twitching

    **** UPDATE **** Had my final neuro consult who told me that I did not have ALS and to forget about the disease. GW Univ. ALS Center also reviewed my case and found no evidence of ALS. Recommended follow-up EMG and nerve conduction study in 4 months due to family history of ALS. Said I might...
  5. P

    My Experience with Twitching

    I was ignorant when I was a late teenager. Knew my grandma had ALS but didn't really know what that meant. Wish I would have talked with her more, even when it was painful with her communications machine. I feel much better from an anxiety perspective, and to the guy that has a similar...
  6. P

    My Experience with Twitching

    Mid 30's male, grandmother diagnosed at 73. Began twitching in arm in early December, went away for a few weeks, came back in late December in left calf and r. arm, and felt like it was spreading each week: right calf, thighs, neck etc.. I twitch somewhere in my body every few seconds, for...
    • probablycrazy
    • Thread
    • als anxiety arm back clean emg diagnosed early emg immediately meds mri power stiffness symptoms tests twitching weakness worried wrong
    • Replies: 4
    • Forum: Could this be ALS?
  7. P

    I'm Probably Crazy ("Do I have ALS")

    36 y/o male with 1 grandparent diagnosed with ALS (at 73) and died at 75. 2.5 months ago had twitching every ~8 seconds in right arm. After a week it moved throughout body but was primarily in right arm. It went away for 2 weeks, then came back primarily in right arm and left calf (and...
    • probablycrazy
    • Thread
    • als anxiety arm atrophy back diagnosed do i have als emg mri muscle muscle weakness running tests twitches twitching weakness
    • Replies: 0
    • Forum: Could this be ALS?
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