Recent content by POTStiff

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    I have postural orthostatic tachycardia syndrome but fear of ALS

    I just wanted to let you all know that I am bacl from the cleveland clinic NeuroMuscular Doc- he said NO signs of ALS, MS, at all. I passed the neurological exam and feels no need for an EMG. THOUGH he has to dig deeper into my possible small fiber neuropathy and pOTs therefore go for a...
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    I have postural orthostatic tachycardia syndrome but fear of ALS

    wright- I thank you for your answer- I am being sent to a neuromuscular doctor for small fiber neurpathy that was found on whats called a sqart test. I feel for all of you who have ALS - and I know no words will ever help - and I give great respect to everyone one of you who go through this...
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    I have postural orthostatic tachycardia syndrome but fear of ALS

    Vicki - my POTs doctor just drew blood for many vitamin B's , D, Copper anad I dont know what else. and I have a new patient appointment tomorrow with a neuro/muscular doc, for the small fiber neuropathy. . . I just want to feel comforted thiinking that its a good chance i DONT have ALS
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    I have postural orthostatic tachycardia syndrome but fear of ALS

    and then what is the difference between muscle fatigue and muscle weakness? (trying to learn here)
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    Dizziness

    dizziness can be from dehydration, Orthostatic hypotension, unexplained vertigo, I have dizziness from POTS (but that includes other symptoms) if it doesnt go away id get it checked out but from my understanding it is not a symptom of ALS
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    I have postural orthostatic tachycardia syndrome but fear of ALS

    The tremors that I have noticed in my left arm and shoulder make me concerned. . .I know I have anxiety and have been through much stress - my first counseling appointment is next monday.- with a christian counselor (due to my faith) and I hope that , that can help me a lot- I look at my...
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    I have postural orthostatic tachycardia syndrome but fear of ALS

    please i am very scared
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    I have postural orthostatic tachycardia syndrome but fear of ALS

    My POTs specialist is sending me to a neuromuscular doctor for possible small fiber neuropathy. I see him tomorrow; but lately I have had muscle achyiness in my left shoulder all the way down into my left wrist and sometimes left fingers. - they seem very weak byt more so just achy like i just...
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