Recent content by poet1973

My doctor is ordering b12 shots twice a week. Wondering what these are for?

All of that is true. Sometimes when they ask is there anything i can do for you, I just want to say can you give me my arms and legs back. Lol I dont want to tell anyone I'm a little depressed because thats a whole nother rabbit hole!!

Three words that I hate now, " Are you ok?". I know that people are not trying to be inconsiderate, they're just genuinely concerned. However sometimes I just want to scream. Because no i'm not ok, can't do the things i used to do!! I dont want to seem ungateful, because thats not the case! I...

Hall you also try the healthwell foundation they helped with my radicava

Can i download that to my phone

Yes banking my voice. I have the voice keeper app.

My tobii rep told me there are apps that i could use with my samsung phone to bank messages but having trouble finding one. Any suggestions

Yes thats the problem is the length. Cant maneuver it into the rooms we were going to use it in. Are there lifts with smaller dimensions, mostly the base.

Yeah the base to long to maneuver into the rooms we were going to use it in. The tools you need to deal with this disease are so damn expensive.

Too long!!🤪

Yeah we cant get it thru the doors in my bedroom that and bathroom thats what my wife was wanting it for

The ALS association sent me electric hoyer lift but its huge and is giving us trouble maneuvering through our small house. Especially our small hallway. Any advice. Thank you

I go to an als clinic at semmes-murphry in Memphis. Don't know if this would help.

This damn disease! I was supposed to go to pt this morning however, haven't had abm in week and now I can't stop!!!!😩🤪 It would be ok if I could go by myself but that ain't happening. My legs and left arm have gotten so weak that I can't get up and down myself. It frustrates me that I can't do...

This damn disease! I was supposed to go to pt this morning however, haven't had abm in week and now I can't stop!!!!😩🤪 It would be ok if I could go by myself but that ain't happening. My legs and left arm have gotten so weak that I can't get up and down myself. It frustrates me that I can't do...