Recent content by Poet Chistopher Robin

  1. Poet Chistopher Robin

    update from chris the poet

    I am terminally ill and dying I have COPD meaning my lungs are gone, also MND motor neurone disease which is killing me daily plus, a small cancer growth in my left back plus a right front hernia plus a broken right foot After celebrating 35 years of marriage two weeks ago my wife has thrown me...
  2. Poet Chistopher Robin

    Word on Poet Christopher Robin

    The peg feed op went ahead no problem took all of just five minutes, no sore throat, although a week later and it’s still weeping as still also very sore too, Currently I take only my meds and energy boosts down it, but with just my left hand it is impossible for me to do alone The ALS stepped...
  3. Poet Chistopher Robin

    Peg fitted last week

    The peg feed op went ahead no problem took all of just five minutes, no sore throat, although a week later and it’s still weeping as still also very sore too, Currently I take only my meds and energy boosts down it, but with just my left hand it is impossible for me to do alone The ALS stepped...
  4. Poet Chistopher Robin

    Toes curling under

    The chiropodist gave me this little sponge with a loop in the top that hooks over one of my toes and the cotton is shaped to stop the toes curling If I find it online I’ll add you a link or its actual name
  5. Poet Chistopher Robin

    slurring words

    Thank you BeckyW that gives us each and all hope :p:p
  6. Poet Chistopher Robin

    Yet more problems for me

    You would not believe what happened to me today, was sitting in the wheel chair at, St Oswald’s day centre main entrance, and just waiting the bus back home, when the phone got a message. Lifted it out my pocket and managed to drop it under the damn wheel chair. In moving the chair backwards I...
  7. Poet Chistopher Robin

    Saying good bye to the men in my life

    A warm breeze passing by May be someone in Heaven Trying to relay or yet try To say top you please don’t cry An Angel or two up there Sweet loving despair Reaching out to you Reflecting they care
  8. Poet Chistopher Robin

    The problems just keep piling up for me and my wife

    I’ve actually got copd, which means my lungs are gone, als, plus a small cancer growth in my back at the left and a hernia on my right, then my sister in law is dying from cancer, mother in law was cremated just six months back yet we’ve had my wife’s alcoholic brother in to this actual...
  9. Poet Chistopher Robin

    Incredibly sorry to any one over the second misunderstanding, but in good excuse we have a great...

    Incredibly sorry to any one over the second misunderstanding, but in good excuse we have a great deal more worry not just about me than I can talk about, plus I’m having to fight this disease on my own for best part of every day. I am truly dearly sorry to have misjudged you as also...
  10. Poet Chistopher Robin

    Allen Lake is in heaven

    The sorrow behind your smile Will last but a short brief while Friends and family spur you on With time a smile you’ll compile God bless all the family
  11. Poet Chistopher Robin

    Dry mouth as throat in bed help please

    How can you stop your mouth as throat from terribly drying up, the instant your head hits the pillow. I’ve got the saliva spray as also the salivix gums but both are no good when asleep I know its part of the ALS but it’s also one of the biggest worries
  12. Poet Chistopher Robin

    Respect folk with ALS in the forum here please

    We all need to be very careful, cautious in fact to what we say to other forum members, many of us are possibly a great deal ill and progressing a lot more rapidly than our text may ever relay or even appear to show Look at me the other week arguing with Richard over a misunderstanding on my...
  13. Poet Chistopher Robin

    Has Anybody Here Seen My Old Friend ....

    I know this now my friend, thank you for writing, and more so for caring, that in itself means a lot. I’m ok just now thanks to the hospice I’ve been in for over a week. I was so ill I thought it was my end
  14. Poet Chistopher Robin

    Peg feed advice required please

    What they say about having a peg feed sooner rather than later I would say is indeed very valid for any one with als. I am now booked in for one in the 22nd this month, but have two very great fears, one being i will likely be to weak. Two being the camera down my throat, the last time caused...
  15. Poet Chistopher Robin

    HGellio there my friend, thank you for writing, and more so for caring, that in itself means a...

    HGellio there my friend, thank you for writing, and more so for caring, that in itself means a lot. I’m ok just now thanks to the hospice I’ve been in for over a week. I was so ill I thought it was my end
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