Recent content by pmsawyer

Thanks to all that replied. I am looking at each suggestion to find the best for my purposes

I have lost my voice and am using an iPad with Speakit and Flip Writer to speak for me. I am not enamored with either application/ I am asking what others use on Apple devices and a few works if you like the application or not. Thanks

Greetings and welcome.

Hello Kat, Your posts have been helpful and encouraging. Pete

Good morning KatB, I take Nuedexta, like for you it has kept me sane. Thank you for the reply.

I'm confused now too. Does the P in PBP mean progressive or pseudo? Both have appeared on my reports prior to a few weeks ago. I am told the the disease could progress into ALS.

Nikki, thanks for the advice. I picked this forum because it was about the disorder I have. Seems as though the disorder is uncommon. Good to met you as it were.

Thank you Janelle. Good to have you along for the journey.

I see you all over Max, good to make your acquaintance.

PBP pseudobulbar palsy = motor neuron disease PBP pseudobulbar affect - uncontrolled laughing and crying a real pain, on TV advertised by Danny Glover

My name is Pete. Recently diagnosed with PBP and PBA. Took several months to get that diagnosis. While it wasn't the best news it is better to know than not. Looking forward to meeting group members and getting to know them better.