Recent content by pittsburghgal

  1. P

    My heart is broken, but he is free

    Jrzy, I am so sorry for your loss of your husband. You were a wonderful CALS. You and your family are in my thoughts and prayers. Sharon
  2. P

    Back from Yellowstone

    Wow, V, you are amazing! I hope your hand gets better quickly. Looking forward to pictures. Sharon
  3. P

    Transfers: Sliding board vs. Hoyer

    When my husband could no longer stand and pivot for transfers we had to go to the hoyer lift for all transfers. He did not have any arm or trunk strength so the transfer board would not work for us. Sharon
  4. P

    He is flying free!

    Kathy, I am so sorry for your loss of your husband but glad that it was such a peaceful passing. You and your family are in my thoughts and prayers. Sharon
  5. P

    Pulmonary Specialists in Pittsburgh, PA

    My husband saw Dr.Kristo (UPMC) and he had a lot of experience with ALS. We saw him at the Monroeville office and also in Oakland. Sharon
  6. P

    Questions about BiPAP/Vent

    My PALS, Frank, has described a feeling of difficulty breathing immediately after coming off BIPAP every morning, although it is not close to being as severe as what you describe, Steve. He is on BIPAP via trach only at night time and this has remained stable for the past 4 years. He told his...
  7. P

    Kay is flying free

    Marcia, I am so sorry for your loss but glad that Kay is free. She was such an amazing woman and we will miss her dearly. You and all of her family are in my thoughts and prayers. Sharon
  8. P

    In sickness and in health

    Have a great trip, V. I hope all goes smoothly. Sharon
  9. P

    Columbia's new neck brace

    This would be so helpful for my husband. He is now in the fixed chin to chest position and is unable to use eyegaze. Thanks, Laurie. Sharon
  10. P

    2019 Spring trip to Yellowstone

    Steve, thanks for sharing your great photos and descriptions of your exciting trips. My PALS and I look forward to reading about your trips each year. We have not been able to travel for seven years so it is a real treat to read about your adventures. Sharon
  11. P

    In sickness and in health

    V, I pray for a speedy recovery from your injuries and that your thyroid lump will be benign. We CALS get no break from our caregiving responsibilities when we are not feeling well. I badly injured my foot last Thursday and am having a lot of pain when walking. I just want someone to take...
  12. P

    My husband

    Kiwi, your words describing "hanging on by my fingertips", "trying to find a way to get through this" and feeling that "there is no end in sight" really resonate with me. My greatest fear at this point is that this will continue for many more years and I don't think I have anything left in me...
  13. P

    My husband

    Hi, Kiwi, My husband also had very slow progression. His first diagnosis was in 2011 and it seems like he is in the same physical condition as your husband. I also noticed a change in his personality over the past couple of years-- mostly a loss of empathy for me. I discussed this with him...
  14. P

    Heavenly Healing

    Anne, I am so sorry for your loss and glad that he did not suffer long. You are in my thoughts and prayers. Sharon
  15. P

    Moving forward

    Mary, I am so glad that you are feeling younger. This gives me hope because I feel like I have aged at rapid speed since taking care of my PALS these past 8 years (especially the past 4 years). Prior to this I looked and felt a lot younger than my actual age. Sharon