Recent content by Pillow

Thank you everyone. I did love my Dad very much and was more than willing to go the distance in terms of his care. The plans were in motion. We did think we had more time however we plan and God smiles and I believe God makes no mistakes. It’s so bittersweet because he loved life and battled...

Thank you. This forum is a credit to you. As I scrolled for months I couldn’t believe the amount of people on here who think they might have ALS. Failure is failure as it says in the stickies you can’t miss it. You have great patience.

Thanks for your replies. My Dad actually passed away suddenly today it was such a shock to us. I will be fundraising for this cause. The route to diagnosis alone is horrendous.

Thanks for your replies. My Dad actually passed away suddenly today it was such a shock to us. I will be fundraising for this cause. The route to diagnosis alone is horrendous.

Hello. My Dad will soon be attending the centre of excellence however the neurology team have asked him a lot of questions about where his symptoms started. My Dads breathing is very compromised already although he says this started with foot drop. His voice was affected soon after the foot...

Carer

For any future visitors to this thread the diagnosis is als and ulnar compression hence the nerve biospy situation.

Thank you for your replies. You seem to receive a-lot more access and information in the US in relation to each step so this forum is most helpful.

Thank you. And repeating an EMG 2 months after the first one would that be standard also? They have given no indication they are looking for something else as clinical examination is highly suggestive of MND.

Hello. Thanks to the people who set up and moderate this forum it is most helpful. I’m currently supporting my Dad through his journey to diagnosis which has been long. Have read many posts on here which have been very informative and helpful. Would anyone be able to shed light on why a...