Recent content by pgregory

Had an assessment last Monday (1/6). Breathing and strength more or less the same (small variations up and down). Subjectively, I feel weaker with worsening balance. It's only been five weeks, so I plan to continue at least through one more assessment before making a decision to continue or...

Just gave myself my sixth biweekly 1.0ml shot. No clear ill effects, no clear benefit. I have a strength assessment in January that may shed some light.

Hi Kim, I kept thinking I had replied to you but I can't find it. The twice-a-week dosage of acthar is 1.0 ml. This is the largest dose in the trial (2 ml/wk where the other, daily dosage is .2 ml or 1.4 ml/wk). I can't say whether this is helping me or not. I have noticed a cycle of...

I started the Acthar trial on 12/2. I am receiving the highest dose, 1 ml, twice a week. No bad reactions to report. No objective or subjective changes at this point (and I am unclear on how I will know what effect, if any, this medication is having). I will post updates.