Wanted you to know I listened to all your suggestions re my visit to sister-in-law with ALS and I want to thank you . Our visit was very special for all of us. I was just myself and saw her as herself despite the equipment and her labored breathing. We laughed, cried, drank too much, sat quietly...
This is my first post here but I have been studying ALS since my twin brother's wife was diagnosed less than 2 years ago. They are on the east coast and I am on the west so last time I visited was last Aug. At that time she was paralyzed in the legs only. Now she is from the neck down and on the...