peter57

Happy New Year! Hope you don't get too warm down there. You could always send some our way!

Happy New Year, Mate! Hope you had a fun-filled celebration... you are already there. Let us know if 2010 is great or what! xoxo

Hi Peter! Have a HAPPY NEW YEAR!

Hi Peter, how are you doing? I was just reading in a Canadian magazine comparing Tony Abbott to a couple of Canadian politicians and the writer was talking about his fondness for showing up at the beach in a speedo, what they called "budgie smugglers". I just about passed out because I was laughing so hard over that. Gotta be Aussies coming up with that one. Merry Christmas!!

Hello Peter
How have you been keeping? I hope all is well in your neck of the woods.
Peter how do I post a new subject on the blog?
All the best to you and yours for Christmas and New Year.

Regards.
Garry Lee
Cowboys never quit we fight to the end. So watch out ALS.

Thanks Peter.
Lyn and I go to Newcastle tomorrow and have the operation to the knee on Tuesday. I still hope to get some more distance from my legs before I take up residency in the wheel chair. I am not looking forward to that, unfortunately walking is getting harder and two sticks are now required also I am becoming slower.
My right hand has little power as well as the arm. The left hand and arm are starting to go out in sympathy to the right.

Peter haven been a very active person all my life, I worry greatly about how I will cope being totally incapacitated and not being able to do anything for my self.

I don’t mention my concerns to Lyn and I suppose I am selfish not doing so, but I try to stay strong for her sake knowing what she will have to go through with me and having our life together cut short by ALS.

Sorry for rambling

Garry

Cowboys never quit we fight to the end. So watch out ALS

Hi Gary
Best of luck with the knees.
Fortunatly i dont have any soreness, well except for an occasional normal pain that goes away.
I do get cramp mainly in my hands if i try and do fine wok for a ling time with them but some stretching normally removes it.

It really is a strange, strange illness we have. Not many people have exactly the same symptoms.

Cheers Peter

[Hello Peter
Not doing to badly. I have to see a specialist tomorrow in Singleton, about my left knee (he comes from Newcastle)

Two years ago I had both knees arthroscoped to clean out damage and then six months later the left one was done again. Now 18mths later the left one needs fixing again with surgery possibly next Tuesday.

I need both walking stick to keep me upright after having a fall from the knee when it let go.

Perry do you have a remedy for soreness. My right hand is pretty bad, stiff and having trouble closing it. They fingers are always sore; when I come to think about it a lot of other places are as well.

Take care Peter.

Cowboys never quit we fight to the end. So watch out ALS

Take two.

I did not realise that I was limited to only few words.

I have been doing some scroll saw portraiture work to keep the mind and hands active. Gets a bit hard some time on very delegate cuts, but I have plenty of time on my hands, but a bloody active and inquisitive mind.

If I knew how to insert a picture from my computer I would show you one of my projects.

Peter how do you cope with the cramps, stiffness and soreness?

Cramps are a real problem in my right hand and fingers, especially if I over use it or hold onto something tight haaaa, tight my 4 months old grand son probably has as much strength.

Garry

Hi Peter.

It is a club that only the chosen one can join .....I would prefer to be one of the unchosen. But as long we are in we need to make the best of it.

Thanks for the complement on the age. I am actually 61 and married to the best woman in the world, Lyn for 41 years.

The trials are to test a heart table they think may have some benefit to patience with MND. Naturally there is the double blind and when you start only the chemist knows if you have the real one or the dud.

There is 4 visits with a lot of different testing procedures to have a base of your health and the progression of the disease before they start with the drug. It will be my 4th next month .

There is no indication of it working with the few that have already completed the trial, but it is only early days yet.

I have no problems with eating, drinking, talking.

Regards Garry

Hi Pete.

My name is Garry Lee and I am also from Aus. Tamworth region in NSW.
Apparently I have had the MND for around two years, but only diagnosed at the end of June 09.

Some things are a little harder to do now, can ride my horses or get into my horse truck. Still getting around with the aid of a stick.

My right side is the most effected and very weak in the right hand and arm. The cramps in the effected muscles is a bugger.

Just wanted to touch base with other Australians. There are a few in the Tamworth area but no one wants to come out of the wood work. I can't blame them as everyone deals with it in their own way.

Started on a MND trial on the Prince of Wales Hospital in Sydney 3 months ago.

Garry

Hi Peter
Thanks for the welcome. Definitely appreciating the sense of humour that often appears in threads within this forum.... much prefer my tears to come from laughter!

We got another dust storm in Sydney this morning. Not nearly as bad as the last one.

Cheers
Five (Nicci)

Love the Ned Kelly Avatar- you bushranger you!!