Recent content by Pernille

1) I don't understand why the recipients of the drug haven't sent the substance to a lab for analysis. 2) Injecting an unknown substance seems bizarre no matter how desperate you are. 3) I can't think of ANY neuro or any other specialist I know, who would treat a patient with a drug that hasn't...

Don't take any before you are tested again. When they begin examining you, they need a clear picture.

Yes I attended this group and I hope we can make a difference to some extent. Denmark is a village! Everybody knows somebody! Don't hesitate to ask if you have any questions. I would go back to my GP with all my symptoms written down. Ask for some blood work to see if you have any auto immune...

https://www.google.dk/url?sa=t&source=web&rct=j&url=http://www.kristeligt-dagblad.dk/historier/als&ved=0ahUKEwiLla3mk6zNAhWBGSwKHdAyB30QFggYMAA&usg=AFQjCNHyDou9cBchCvWymIU5L2Us3iidIQ&sig2=NqoxREGgwYMsftY7VQGoiQ

I know you have to go via the system at some point, but they might come up with another diagnosis and put your mind at ease. I know it's tough and I respect the GPs, but they don't see many ALS cases - if any - and they might send you in the wrong direction. Please don't panic. Stick to a...

Hi Koko. Sorry for answering so late, I'm not often on the forum. I'm so sorry to hear your story. Waiting is terrible. You can always call RH and ask if they can see you any sooner. They might have a cancellation and see you instead. There is nothing I can do for you to speed things up. You can...

Thanks Mike. You are most helpful. Just let me know how! I find it a bit difficult navigating this forum. By the way, I have visited the US many times and will go again for sure. Best regards P

I'm a very private person Greg and would like to remain so. I wonder why my reaching out to a fellow citizen in my tiny country makes you think of weirdos, but anyway - the world is a strange place and I hope Eric finds his way with or without my help. I won't post anymore and I wish you all the...

I can guide you through the Danish health care system and the borrelia issue, but would prefer to to it in private. I don't feel comfortable posting my advice to you here. I just can't figure out how to do it, as I can't PM you. We are both in the Copenhagen area, so what about coffee midway...

Hi Greg. If my 4 posts in any way made you and the forum members nervous, feel free to delete them and I will stay off from here. I am deeply involved in the fight for experimental treatment in my country and member of a support group. Has been working in pharma and health care for 25 years.I'm...

Great news Eric. Continue working with the specialist. You need further clinical examinations and bloodwork to figure out your problems. You are mentioning borrelia - I have absolutely no idea - but promise me you won't go hysterical about it. There is too much hype going on and too many who...

You are in good hands and not to worry. Call them a couple of times to see if you they will be able to see you sooner. All the best P

Eric it seems to me you are i the Copenhagen area. To which hospital are you referred? P

To which hospital are you referred?

Re: Hi, new member Sorry to see you here Ginger. To my knowledge its ALS in all European countries except the English speaking ones. P