Recent content by PennyX

  1. P

    working still?

    Hello! I am still working full time and believe me it is very rough. I getup early take the dog out for her walk get ready for work go pickup his 91 year old mother. she is my only help right now. after work cook dinner take MIL home take dog out again by this time i am exhausted and do only...
  2. P

    CALS who have left a job for their PALS

    A big thanks to all who replied, it is good info. My husband is on medicare and on my policy at work. i am definately stressing over this-probably too much..it isn't the money so much. he has SS disability and a bit from private insurance. i just worry as i said about our healthcare. We...
  3. P

    CALS who have left a job for their PALS

    I am wondering how long it will be until I have to leave my job to take care of my husband. His arms are weak and his dexterity and grip are very weak. I need to keep working as long as possible to keep our health insurance, but the thought of him home alone all day in this weakened condition...
  4. P

    I keep thinking what if it was me and then I realize just how dire this illness is for him. And...

    I keep thinking what if it was me and then I realize just how dire this illness is for him. And to know it will get worse- the breathing doesnt seem to be a problem yet. I really appreciate your input and your offer to advise me on this. It stinks, doesnt it? Hope to hear from you soon, now...
  5. P

    My husband is the opposite of yours, he doesnt want to travel at all because he is afraid...

    My husband is the opposite of yours, he doesnt want to travel at all because he is afraid "something will happen" as he says, to put him in the hospital while we are away. I think we should go while we can, he is still able to use his arms and hands, though on a limited basis-and they tire out...
  6. P

    My husband started having really noticeable tiredness and weakness in his arms back in Jan 2012...

    My husband started having really noticeable tiredness and weakness in his arms back in Jan 2012. Getting weaker all the time, he went to a neurologist Dr Ong in Monroeville who mentioned ALS as a possibility. At that point I started reading up on it and it scared the bejebbers out of me...
  7. P

    Hi KissJ- sorry I didnt reply, I am new to all this forum stuff and dont know how it works. I...

    Hi KissJ- sorry I didnt reply, I am new to all this forum stuff and dont know how it works. I didnt notice there were messages, i was wondering how I would get a reply from you. Sometimes I can be so dumb! Anyways, thanks for bringing me up to snuff on your family. We have 1 daughter who is...
  8. P

    Miss my husband. Who is this angry guy?

    Barbie, my husband is also losing use of his arms and hands, and I am scared for him. I panic when I think how he won't be able to eat, blow his nose, etc. So far, he is still able to drive and do limited things, but I know what's coming since I've been reading these forums. Like you, PK, I...
  9. P

    Hi KissJ, I see by your hometown that you are located near me. I was wondering, did your husband...

    Hi KissJ, I see by your hometown that you are located near me. I was wondering, did your husband go to Shadyside or somewhere in downtown Pittsburgh to the ALS center? My husband was diagnosed there and they mentioned they have a support group but unfortunately, he wants no parts of it...
  10. P

    Cost for getting legal things in order...

    Thank you so much for all the posts! I also have been wondering about these types of issues and how to deal with them. My husband's handwriting is getting very bad. I'll take a look at legal zoom and the other sites mentioned. Good advice, I appreciate the input.
  11. P

    This is simply exhausting.....

    Thank you to all who shared their stories...I've been lucky I guess, my husband is still able to cook dinner for me and do limited things around the house. He was officially diagnosed 2 months ago although he has been having problems all of 2012. He stopped working 7 months ago because his job...
  12. P

    poop problems again!

    Oh happy day, the day I discovered this forum. You folks are so caring and giving, I really appreciate the tips and open honest communication! My husband was diagnosed about 2 months ago now, his arms and hands are weak and he seems to be having digestive issues now. That is what brought me to...
  13. P

    Long Term Disability question

    Thank you to all who gave me input, it is nice to talk to someone else about this. I appreciate your advice on the lawyer issue; I was on the social security website and it did seem as if his diagnosis was almost guaranteed due to it being on their list of approved illnesses (or however they...
  14. P

    Long Term Disability question

    Hi, I am new here as a caregiver but I can tell you about the LTD benefits. My husband has just been approved for them. This is how it went. At his job he paid into short term disability, so he collected that money after showing proof (i.e., medical records, etc). When that ran out, his...
Top