Recent content by Penelope

I am ok thanks for asking. Some days are harder than others. There is some other personal stuff going on in my own home at the moment making things harder. Feeling exhausted and might go and get some counselling for myself soon.

Thank you for the advice Greg I cannot see a manage attachment section at all perhaps I am not permitted as yet?

Hi everyone Sorry I haven't been in for a little bit and didn't see all the responses x Yesterday was a great day. So far the tally is at 2.3 million and rising. I was wonderful to be a part of I am sure Dad would have been proud to see my son shaking a tin at the G. We did have a chat to...

Hi all It's been awhile since I have been in. It has been three weeks since Dad passed after the full on week of organising the funeral I have spent my time with my Mum. I have tried to organise her bills etc so she is saving some money now she is down to one pension and also hoping she...

Thank you everyone Dads service was yesterday I had run myself ragged organising it and was very shaky and emotional before the service but got through it although did break down halfway through my eulogy but a few deep breaths and managed to finish it. I think Dad would have been chuffed at...

What a gorgeous bunch you are taking time out of your own journey to support me. Thank you so so much. Still running around like a lunatic. Having 3 kids who are self centric can sometimes help and sometimes cause me to swear loudly. I wrote my eulogy today which flowed easily once I dared...

It has been long full on day. The staff at the hospital were truly amazing they had carefully packed every single thing up so we didn't need to do a thing. We have already organised the service and wake. I have been like an energiser bunny I have even done the first version of a photo montage...

THank you so much Tillie Nikki and Barbie Managed a short fitful sleep now up and will head to the hospital in an hour and then the funeral home. I will keep Coming in and reading stories and posting anything I can think of. Dreading telling my kids especially my Dads loudly admitted favourite...

Good morning. Dad passed away 2 hours ago at 115am. I am typing now as I cannot sleep and am lying in a bed at my parents house trying to wrap my head around this. He had seemed a little better the last two days we had given him a couple of pieces of good news he seemed keen to type things on...

Re: Dad in hospital infection? Breathing a problem Good morning. Dad passed away 2 hours ago at 115am. I am typing now as I cannot sleep and am lying in a bed at my parents house trying to wrap my head around this. He had seemed a little better the last two days we had given him a couple of...

Thanks all. Crappy day again (days should be measured in degrees of crappiness at the moment lol) He has had a catheter put in as he was retaining too much urine. Hopefully that will be more comfortable. Today he typed on his ipad (which is a big effort for him) that if he can't get out of...

Hello again I will keep coming in and updating. Not only because it helps me and helps me keep it all straight in my head but perhaps some other people and carers living with this awful disease will be able to get some information from it. I know I spend many sleepless hours trying to...

Thank you so much. This forum has been a real life line for me x

Thank you all you are very thoughtful. I am there as much as he will allow (he often asks us to leave) sometimes we wait in another room sometimes I go home to see my kids. He is asking for morphine more frequently he is on 4ml 4 times a day. 2 days ago it was 1ml. I took in a CD player and...

Hi Things are not good and it would appear we are in the final days. I had planned to spend the night at the hospital but as he is medicated and we are a ten min drive away we were told to go home. He is rapidly declined in the last 24 hours. The pace of the decline has staggered me. 10 days...