No I didn't ask a lot as tbh I was in shock it's not down to Fybromyagia and was expecting him to sign me off. Just got home and headed off to dr google! I know he was concerned about the breathlessness in particular which lead me down this path.
I know at one point he thought it was MG due to...
Forgot to mention my next course of tests are:
More bloods,
A muscle biopsy
An MRI of my limbs
I've been referred to a respiratory clinic also to help with the breathing difficulties.
Really frustrated would love an indication of what it is but my neurologist is not letting on just stating a...
I've had symptoms for about a year I'm not going to list them but just say that at present my main symptoms are breathlessness, fatigue, fascinations/spasms and nerve/joint pain which do seem to be getting worse and have affected my mobility.
We went through thinking it was physiological until...