Recent content by peanut78

Well other than twitching I just have what I guess would be called "perceived weakness". But the twitching just keeps worsening, which I know in some cases can be the first symptom.

Thank you for your responses. I started out wtih all of a sudden, widesperad twitching. Now it is more localized and i'm really worried. I've had a constant twitch in my right hand for 3 weeks, off and on. I did have a normal EMG, but only 2 weeks into bodywide twitching. So I am more worried...

I have been twitching widespread for about 21/2 months now. More recently I've had some localized spots that can last for days. My questions is, with ALS do your twitches come and go, or when they start in one place do they keep going nonstop until the muscle atrophies? Thank you for your help.

Thanks for your replies. So basically it could be the first "weak" area, or usually later in the disease? I don't have any true weakness anywhere else, just the twitching...

Hi Everyone, Sorry to be a bother. I have posted several times before, but just to recap here goes. I have been twitching for about 2 months, no true weakness or atrophy that i know if. I had a normal EMG on my left arm and left leg two weeks into the twitching. Now my twitching is more...

Once again, thank you Al. I know you're probably right. I hope you're doing well. Have a great weekend:)

I have posted a few times about widespread twitching for two months, percieved weakness, etc. My question is how long is it usually from limb to bulbar symptoms? I know it's so different for everyone, but an average time span? I had a clean EMG two weeks into the twitching. Now I feel like my...

Hi Jess, So sorry to hear about your sister. What tests has she had done, normal or abnormal? Has she had an EMG yet?

Al... Just saw your picture on that website. Love it:)

I used to sell a statin drug, and myopathy/myalgia is a possible, but rare, side effect. I guess those conditions could have similar symptoms as ALS. I know that one of the side effects to look for while on a statin is muscle weakness./pain So that may explain why some people with ALS that are...

Thanks Peg. I'm just wondering then why so many people have multiple EMGs with opposite results, normal and abnormal.

Apparently it does not matter where they do the EMG because ALS and the muscular dystrophies even though they may start in one part of the body are systemic and the EMG would pick things up anywhere.

For those of you that have experience with muscle atrophy, I was wondering if you could share some info about it. At what stage in the illness did you notice it? Was it symmetrical? What areas was it first noticed? Was it before/after weakness? Was it gradual? Thanks guys:)

Hmmm. I'm not sure my twitches look that way. Mine are more like a flutter or heartbeat. Thank you Al!

Thank you Crystal and Al! Al, When you say twitching with ALS is usually 24/7, and doesn't stop and start, what exactly do you mean? Do you mean that it's a non-stop pattern? Or would a twitch be all day, but a few times a minute, hour? thanks!