Recent content by paul-uk

If you have no belief in Creatine 'maybe' helping slow the disease, why do you take it?

Ok, I'll admit there seems to be no evidence it can benefit humans, but look at it from a different angle. You may not agree with this theory, and as you're now moderating my posts, may not even publish it. Creatine has been proven to slow disease progression in mice.. yet was not shown to be...

Creatine - The ALS Association Seems to slow the disease in mice, and usually what works with mice also works with humans. "Recent studies in the transgenic animal models of ALS (model of familial ALS) provide evidence that creatine is effective in protecting degenerating motor neurons and...

I was offered Riluzole (Rilutek) but after researching the pro's and cons, decided against it. .

When I was diagnosed with Bulbar MND I had total loss of intelligible speech, mouth clamping shut and teeth chatter. That was all. No fasciculations, no loss of swallowing ability, no loss of strength.. nothing. My symptoms got worse straight after diagnosis. I sometimes think we create part of...

Hi. Just read one of your posts saying you might not have ALS and were awaiting a 2nd opinion. How did that work out?