Recent content by patientkiwi

Hi Everyone. Just another update. Haven't had any dramas for several weeks and he has been quite stable. Now I am second guessing whether he does have FTD or not. If they have FTD, can they control their behaviour? His behaviour right up until a few weeks ago was so much like FTD that...

Hi Everyone Just thought I'd give an update. Have had 3 fairly peaceful weeks (one of those weeks he was in respite care) - pretty much because I am learning to avoid anything that I think will set him off. However, I can never relax and I find it exhausting to have to think about every...

Thanks Tillie. And you are right - if I just focus on treating him with love & respect even though he is not reciprocating and is treating me with anger & indifference, hopefully I will provide a stable anchor for him. That is my goal anyway - often easier said than done but I will do my...

Thanks Tillie. I have been keeping a diary of the progress of his MND right from the start and have therefore kept notes on the changes in his behaviour (not all of them but enough that I can put them into a separate page with dates and behaviours and take them to someone medical). The GP I...

Hi Just wondering if anyone's PALS was formally diagnosed with FTD. I have asked my health professionals at the MND clinic and they said it is very hard to diagnose, so I was wondering if anyone had had a formal diagnosis and if so, how was it done. Thanks

Hi everyone Just giving an update of my week. After the 'discussion' we had last weekend when my husband made it very clear that he hated me going to work, I have not mentioned my job at all this week and he has been calmer and easier to be with. It does mean I can't share the funny...

OMG Tillie - this morning was the first time I had had enough time to read through your information on FTD. I had tears in my eyes as I related to so many of the things mentioned. I can't understand why health professionals do not look out for this and provide support for the spouse around...

Thank you. Today I had the discussion with my husband. It did not go well at all. Basically he told me that he believes that because I am still working full time in a job I enjoy and that keeps me mentally stimulated, and also gives me a wee bit of 'social' time in that I can chat with my...

<quoted text removed> Hugs Thanks Sue I didn't know how to get rid of the quote which is why it was coming up. I hope that I have managed that this time but if not, I would appreciate some help on that.

Hi Tillie I'm real new at posting on forums so not sure how to navigate to profile etc. Will look at this tomorrow night as have run out of time tonight. Just wanted to acknowledge your post and thank you. Will return to it.

Thanks, your support is much appreciated.

Thanks Sharon. I really relate to the fear that it will continue for many more years - I am afraid that the toll it is taking on me will mean that it will ruin my health to the point that I don't even last the distance. Am going to have a discussion with him this weekend around balancing...

Hi Sue He doesn't have any problem sleeping - I do and that is part of my problem :( because lack of sleep makes me so exhausted on top of everything else. I am trying some natural remedies for sleep to see how I go. I will keep that suggestion up my sleeve as an option but it would...

Hi Thank you. I did find Sue's thread and have read some of it and will continue reading related threads - I don't get a lot of time to do this because I also work full time and then need to look after him when I get home while I cook tea, do the washing etc. However, I am amazed at the...

<quoted text removed> Thanks Sue - please see my reply to Sharon. I really appreciate the support and I will definitely see if I can find your previous thread. Because I am the only one in our support group who has experienced a PALS with the personality changes, none of the others in our...