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  • thanks so much for that message Pat. A year already, it's hard to believe :(
    It's pretty tough here, but a day at a time still is the best way.
    much love to you in dealing with this side of the disease xxx
    I hope that you had a Merry Christmas, and found a lot to be thankful for. Soon we will be looking at a new year, and I will be praying that you and yours are happy, and living life to the fullest, with lots of new good adventures.
    Paulette
    Just want to wish you a merry Christmas and happy new year...You are an inspiration to me and so many here!
    I give thanks to God many times a day, for the many answers to prayer, and the fact that we have so much in the way of help. I read your rant post, and want you to know that although we live so far apart, there is someone that hears you. When you are so sad and you need a cry, imagine that I am there with my hand on your shoulder crying with you. I know that it isn't much but I believe that those feeling can travel the miles like they are nothing. Have peace my sister.
    Paulette
    Hi, I saw your post about T's urinary frequency and frequent awakening at night. I'm wondering if he is using BiPap. Sometimes respiratory insufficiency can cause these symptoms. My RT suggested this from a research article in her journal. Using BiPap at night helped me.
    Greetings, my husband was diagnosed in Canada on May 1 of 2012 after 14 months of searching for an answer to his symptoms. We live in the Carribean and ALS is mostly unknown, because of the lack of facilities, the main help from medical dr's etc is to write prescriptions. Many of the drugs available in 1st world countries are not available, luckily morphine is. T (my husband) suffers from severe muscle cramping from his groin to his toes, he can only pivot and take tiny steps, his arms and hands are weak and he has little grasp in one hand. Now I find his voice is changing and the neuro said one side of his throat is getting weak. I write all this to you because I hope that you can give thanks that you or your loved one has an ALS Society to help you, clinics and volunteers, it is hard for all of us. So when it gets really disgustingly bad, remember someone out there is going through it too and maybe it's even worse for them. P
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