Recent content by Panos1978

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    Hi lotusturk, Haven't heard from you for quite some time. What is the latest development? Have...

    Hi lotusturk, Haven't heard from you for quite some time. What is the latest development? Have you been to any Neurologists again?
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    Possible MND

    Hi FrenchFries, I'm sorry you are still in this road. On the other hand you mentioned that you had a 3 day trip in hospitals. So you only saw 1 doctor and mentioned weakness in your neck with a possible ALS diagnosis..? Did any other doctor check you? Has anyone recommended a second EMG? How...
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    Got my emg result. Please help me to understand

    Hi Utku, So how did it go with the doctor?
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    Got my emg result. Please help me to understand

    Hi Utku, My suggestion is to wait a 3-4 days and then try to book an appointment with a TOP EMG specialist in your city. Ask a few neurologists to suggest who is the best. Looking at your results the guy who performed the EMG wasn't sure if he saw fibs and PSWs... He had a (?) after the +1...
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    Scared of ALS symptoms, awaiting a neuro appointment

    Hi, What i tried to say about the EMG is that you should demand that they check 4-5 muscles in each of your limbs plus paraspinals. Its very important to clear everything in your head and don't have unanswered questions after the initial EMG because this will create further stress which will...
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    Scared of ALS symptoms, awaiting a neuro appointment

    Hi worried2014, Good news and i hope everything goes well for you... You haven't mentioned if your neuro checked and identified any atrophy. Left hand grip is normal to be less strong in right hand dominant people so since the fascics are present to many stressed people the only "real" symptom...
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    Various Questions in Regards to ALS

    Hi Twitchy, I am so sorry for what is happening to you. Why do you have to wait until February? I also think that you must have a spine MRI to check the route of your right hand. There might be an issue there. When was that EMG performed? I agree that its really strange for the doctor to...
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    Clinically probable ALS

    Hi Mtzu, I am really sorry for the outcome and i really hope that this can still be something treatable. I read your posts from the beginning and honestly i was very panicked as i'm having similar issues (regarding the twitches). My issues started 13 months ago. Could you please tell me. Over...
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    Update after appointment with Dr. Appel

    Hi again Luke... Just read your previous posts and i think you really over-react. Your MRI showed stenosis and problems on the exact side where you had the atrophy and mild weakness...Exactly the same area where the EMG showed abnormal findings. So i don't get it. Why are you questioning the MRI...
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    Update after appointment with Dr. Appel

    Hi Luke, I am reading your posts with great interest as i am also having twitching in several parts of my body over the past 12 months and we are in the same age group. I had many EMGs - it is quite easy and not so expensive in my country - and basically everyone told me that there was nothing...
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    Leg onset - Question

    Thanks for taking the time to read the threads and respond. I guess you understand it's easy to say but difficult to accept. When someone has a fear about a terminal disease he "translates" everything that happens to his body towards this disease. Let's hope that everyone is right. I...
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    Leg onset - Question

    Hello to everyone, I have posted in the past regarding my health issues mainly with widespread muscle twitching which lead me into a state of panic with several neuro visits and EMGs. Over the past few weeks i am experiencing a strange feeling around the area of my right (dominant) ankle. It is...
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    Curious About Localized Symptoms Over 6 Weeks

    Hi Acronyc, i read very carefully all your posts as i am having this common ALS fear for over 9 months now. I am 36. I have been into panic mode several times and since its quite easy in my country to arrange EMG's i think i might hold a record having more than 20 EMG's all over my body...
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    8 months since Twitching started

    Thank you both for your responses. I am really worried because i read some stories here in forum of people that have progressed really slowly and started with fasciculations... Anyway. If it were bulbar (since i also had issues with my tongue) i am sure that by now there would have been some...
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    8 months since Twitching started

    Hello everyone, It's been a while since i last posted. 8 months ago when twitching started i was under panic and went to several doctors and had numerous EMG's which never really suggested MND. At times i had issues with my tongue, possible right arm weakness etc but symptoms went away so i...
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