Recent content by PALSdottir

My dad's refused speech assistance technology throughout and now it's getting harder to understand his commands. We have a whiteboard with likely phrases and an alphabet (I've been updating it!).

I am so, so sorry. We're wishing you all the support and hugs. When my family got the news of my dad, one of the positive things we did was to immediately make plans for things to look forward to. My mom and dad immediately took the trips they'd planned to take in their retirement - both abroad...

My father's feet are swollen but every time my mother asks if he wants his feet raised he declines.

Congratulations in advance for your family's new twins! It sounds like you're all on board to see each other, it's just a matter of how and when. You wrote a lot about the logistics of flying, but you also wrote it's only a 45 minute flight - I think it's likely they wouldn't need the restroom...

I'm a daughter of a PALS, and although I worry about my dad, I love and admire him for so many reasons not defined by ALS. If you're the type to find comfort in books, "It's Not Yet Dark" by Simon Fitzmaurice is a good read, written by a PALS father of young children, and there's a lot of love...

Hello from a fellow near-Berkeley resident! My dad was diagnosed Nov. last year, but he lives in Michigan.

Thank-you.

Thank-you.

2. I read that since ALS is a progression, it's important to consider that multiple things will be used over the course of time and it's helpful to consider the things as tools not stages. My dad can't use canes, walking sticks or walkers because he's lost more strength in his arms than his...

Let me send pictures of answers to that from the book I'm reading, "Navigating Life with Amyotrophic Lateral Sclerosis" by Dr. Bromberg under the topic, "How Can I manage My Saliva?"

Hello, I was hoping to ask the community for advice on asking for health/updates from CALS in a way that's least upsetting for CALS, especially for families that are a little bit farther apart and maybe a little bit less open on sensitive subjects. My mother is the caregiver of my father...

Thank-you for the advice!

Hello, I really appreciate your information. Could you elaborate on what you wrote here: "a USB head/chin/tongue mouse with a computer, using built in head mouse capability of a smartphone/tablet" I'm not sure what you mean by a USB head with a computer (using head/chin/tongue to operate it)...