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  • Thanks for the reply. I just like to reach out to my fellow Clevelanders. The entire country seems to hate that city - I love it and would like to move back - except my kids are dug in too deep with their friends, activities, and sports. After going through what we are going through right now, I just don't have the heart to uproot them. We haven't even been able to visit - it was a year at Thanksgiving since I was last able to leave town for any reason.
    We have to decide on a new mattress for my husband. The medical supply co. is offering two choices that insurance will pay for...they won't pay for what I want of course. the choices they have given us are a low pressure mattress or a gel mattress. They will only pay for a "good" one if you have stage II bedsores. I thought the purpose was to prevent bedsores? Something is not right with our priorities. Can anyone suggest the best one for comfort. He currently has an alternating pressure topper which they rent to us and it is antique and does nothing for Ed now. Could use some suggestions. Thanks, Bev
    Hi didn't notice till I was done w/ my post you are from OHIO me too. Hope you find PEACE LOVE & SOME LAUGHTER here. Take care
    Hi Bev from a fellow Ohioan. I live southeast of Columbus now but grew up in northeast Ohio. My family still lives in the Macedonia area - but I have some relatives that are "westsiders" (Parma Heights) like you. I share in all your exhaustion, frustration, sadness. I'm a little younger (45) and probably a little more physically able to do transfers, but it's starting to take it's toll. I have 11 and 7 year old boys and a full time job (we gotta eat) too. I know it's not funny, but because my husband has lost so much weight - I can lift and move him more easily. If he were still up at 190 - no way... Take care.
    I have looked around this forum for some time now but never posted. My husband was diagnosed 6/07. He has been confined to bed and wheelchair for over a year now. He can no longer speak or swallow. He has been on feeding tube since June 2009. He lost use of his arms/hands, he can move his legs but cannot stand. His neck muscles seem to be getting weaker also. He seldom holds his head up in the wheelchair. Extra saliva and nasal congestion are bad. Have several meds with no luck and had allergic reactions to a few. Muscle contractions and leg stiffness have been getting worse lately and making it difficult to transfer him by myself. He also was dxd with Lyme disease and is being treated for it also. He had improvement on IV Rocephin but when he was taken off it because of improvement he went downhill fast. Has anyone else been treated for Lyme disease mimicking ALS? I would appreciate any ones input. Thanks, Bev
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