Recent content by pagefan01

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    Facial droopiness comes and goes

    Thanks for sharing @rmt. Sorry I couldn't reply earlier because of forum posting restrictions and then got distracted by other things. Symptoms: Historical information is noted here: Father's ongoing diagnosis of an MND Current Symptoms: All of the above with some eyelid movement slowness...
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    Facial droopiness comes and goes

    My PALS has been diagnosed with pseudo-bulbar palsy and MND. I noticed that the one side facial droopiness (bulbar palsy) comes and goes - is that common in progressive bulbar palsy?
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    Father's ongoing diagnosis of an MND

    Thanks for the reply. This conversation has me questioning the whole course of treatment in terms of medicines he has been prescribed. My father has been taking a couple of muscle relaxers (Baclofen and Tizanidine) for about 3 months now, mostly to treat pain and spasticity in his wrist/hand...
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    Father's ongoing diagnosis of an MND

    Thanks for your input. I have now emailed the organization (Asha) to start a dialogue. Do you have any suggestions on which direction we should focus on first? I would like to help him in easing the symptoms, like tiredness, sleep issues. Not sure if pushing for another EMG (with a different...
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    Father's ongoing diagnosis of an MND

    Yes, they only did one muscle. You are right, he has upper extremity (right hand weak) and bulbar symptoms (speech slur). The tests were done by a neurologist in India. Recently, my father mentioned a few more issues - sleep issues (dry throat, numbness in one leg), breathing issues (doesn't...
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    Father's ongoing diagnosis of an MND

    Update: My father got EMG/NCV done. The report (attached) indicates MND. Need to follow-up with the doctor. Any thoughts @Nikki J ?
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    Father's ongoing diagnosis of an MND

    Thanks for your reply, Nikki. He had higher TSH level (7.5) in February 2020. No tests have been done since then. Muscle relaxer (Baclofen) was given because of the weakening hand grip (doctor thought possible spasticity). His speech issues started before that prescription began. He is seeing a...
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    Father's ongoing diagnosis of an MND

    My father (68 yo) developed the following symptoms over the last six months - (a) Weak grip in right hand index finger and thumb (b) Niggling pain in right shoulder (b) Gradual speech issues, including slurring, slow speech, low voice Apart from the above, there are some anecdotal symptoms...
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