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  • Hi Elaine, I can't figure out how to change my moms age in my profile. She just turned 87. I go into editing my user cp but it only comes up with a list of preprinted stuff? I'd like to be able to change it.
    Thanks, Trina
    Hi Babes, just popped by to see how your doing...not too bad I hope. Hope you have a great weekend .
    paper bag and lots of tissues and who cares about the mess. I know what you mean though, the bulbar stuff is a pain in the neck! HA :) xxxxxxxxxx
    Happy Birthday to you........ Happy Birthday to you....... Happy Birthday to you....... Save me a piece of cake. Kim
    I believe happy birthday is in order :) xxxxx Lovely angel that I am so glad to have met over the past year. Tillie
    Hi Elaine,
    Thank you for the welcome. I am having a hard time absorbing all the new information and it helps to have others like you out there who know exactly how I'm feeling.

    I've always been the strong one in the family, planning family events, taking care of my kids and my aging parents, working and being extremely active physically. So much has been taken away that it is overwhelming sometimes. I'm grateful to still be able to swim daily and go for short walks, but gosh I miss all the rest.

    My husband and my kids, ages 27 and 28, have been great. I'm lucky to have both kids back here in Tucson. My daughter is having our first grandchild in April. It makes me so sad to not be able to help her out like I was looking forward to. I find myself constantly telling them how sorry I am to be putting them through this. Mostly we just try to enjoy our time together.

    Any advice from you will be appreciated. You seem like a wise, compassionate woman.
    Your new friend,
    Kay
    It has taken it's toll. I had someone from our church (RN) volunteer last week to come over for a couple of hours. I had never met her but she had heard of my situation. It was nice to get away.......I'm hanging in here. Just want people to know that once you are vented it takes on a whole new set of challenges.
    Glad to see back posting. I worry when I don't see you on the forum. You are a true asset to all of us. Take care.
    Thank you Elaine ,I know its not right...kinda denying it. It was just my middle hand then bottom of thumb and now fleshy part and getting real bad cramps......still use hand but not very well.
    Will make an appointment next week.
    Cold,rainy and down right miserable here....send some sun over. South of the country they have 45miles of countryside under water since Christmas....army are going in to help families stranded.
    Enjoy your sunshine sweetheart xxx
    Hi princess,hoping today is a good day for you. Did you hear anything from david about johnny?
    Could you do me a favour and look at my hand atrophy photos in my family album?
    Its getting worse and keep putting it off going to doc's but should really go now.......its not mnd related I don't think but to do with my disabled arm,i am thinking maybe nerve related and effecting hand. Though I don't have tingling or other sensory stuff.
    I would value your opinion. Thankyou. Love .caroline.
    Elaine, is every thing ok with you? Haven't seen you on the other forums recently?
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