ottawa girl

Wow! Would love to see more pics of your paintings! Amazing! And I understand the doing it while you can thing... I'm on an art binge myself for that very reason!! Right now I'm working on some more collages... those are fun, except everything is turning out so cubist due to the straightline cutter LOL! As for my nickname, I wrote all about it on my blog and you can read it here: http://glupavomomiche.wordpress.com/2011/09/09/glupavomowhat/ Hope you have a great day!! :D

Hey Elaine! Just stopping by to say Hi! I was also wondering what is the picture in your avatar... I can't make it "bigger" to really tell what it is. Is it one of your paintings?

Hi there.hope all is well in Ottawa.if you ever come to alexandria give me a call. Love WandaBrittle xoxo

a sticky is a permanent post. If you go to the DIHALS forum, it will have a bunch of stickies at the top of the forum. Silver Legacy is a sore subject with me. They laid me and my friends off "due to the economy" but it was actually "lets get old of the old white *****es" and they kept all the young gals, and of course hispanics!! I worked in the coffee shop for 4 yrs. Silver Legacy is in Bankruptcy, and I have nothing but joy at hearing that. The Carrano's can kiss my ass!!

We had almost NO snow this year. Real bad season for the ski resorts.

Unfortunately, when they move to the other side, it means the ALS is moving. They will eventually stop, when the muscles are completely dead. So just look at them as your friends for now!!

Elaine thank you for the prayers they are very much appreciated. I too will include you in my prayers for fellow ALS patients. By the way, I am a fellow Catholic!

Sorry it took me so long to get back to you, Elaine. As far as I know, there is absolutely no correlation between ALS and autoimmunity. People who have one type of autoimmune disorder are much more likely to get others (that seems to be what has happened to you) but not ALS. Having said that, no one knows what causes ALS, so I suppose the possibility remains but it is highly unlikely. I am very sorry about your diagnosis. Take care and write when you feel the need.

When you say pals you mean friends not People w/ ALS right? Hungover, sounds like you had a good time! It's great to have days that things feel normal, thank God everyday that I get to enjoy fairly normal like. My Mom told me about a product called Vega One (which I've been taking for a couple of days, full of nutrients and beneficial plant based ingredients). I'm going to speak to the dentist about fillings and removal.
Have a good day,
Darryl

Hello Elaine:
Have to ask, what is a f/u appointment? Sounds like an appointment you give to someone your not very fond of. Are you seeing a occupational therapist or physical therapist at all? Going to ask PT about exercising at my appointment next week.
Also I've been reading a lot about increased levels of metal in the blood and how some people are getting their old fillings removed which could contain mercury, not sure if there is any merit to any of that, have you read anything? Also isn't the only way to measure disease progression through EMG's?
Hope your having a good day, we have to make the most out of each and every one, don't we?
Darryl

Hello Elaine:

It was the ring finger on right hand which originally took me to our GP then he referred me to the neurologist. I haven't exercised since about March/April (including running), and now very nervous to do anything. ALS NS, told me that any amount of lifting weights etc won't bring back atrophied muscles, so now thinking don't want to do anything to loose what is left - not sure if that is correct approach though.
I don't believe my breathing has been affected at this point, well not that I've noticed. I last week had a pulmonary test done as a baseline to compare against for any future changes.
Get twitching in my back and sometimes in the arms, nuerologist in Halifax said he could see this slightly in my tongue as well, indicitive of someone with ALS.
Look forward to hearing from you,
Darryl

Hi
I was very intrigued with your story as you were diagnosed a month before me. What symptoms do you have at this point? Are you still exercising or running at all? At this point I find 10 finger typing a bit challening but can switch to two finger hunt and peck and then switch back and forth. Do you get cramps and muscle twitching at all?
While I'm able to do what I can do, I'm trying to enjoy every day with my wife and our two girls . In fact, we are taking them to Disneyworld in August and they're both very excited.
Take care,
Sincerely,
Darryl

Hey! Just wanted to let you know we ALL understand the confusion and mixed emotions that you're feeling right now. It is hard and horrible, but please know it doesn't last forever. Just hang in there! And if you're feeling up to it sometime, you're welcome to read my blog: glupavomomiche.wordpress.com If you start from the beginning and read them all in order, you can pretty much chart my long denial LOL Maybe you'll find that helpful or comforting... not sure, but it's there if you would like to give it a try! Take care! ~ Sarah

Hi Ottawa girl I am new to the site also and despite I am not the one diagnosed I feel as though I was. My brothers voice is gone.He depends on me to answer his questions, he wants to try the stem cell tgerapy