Recent content by oscar1

  1. O

    Can All These Top ALS Neuros Be Right?

    bluedog my emgs were same as yours and muscle biopsy revealed mitochondrial disease . I was having difficulty walking have you asked about mito
  2. O

    I'm back.....

    yes have a look at mitochondria dysfunction - accounts for weakness and strange bp temperature pulse issues too
  3. O

    Fifth EMG - Update

    my emg findings are similar to yours and they are saying mitochondrial dysfunction diagnosed by biopsy - might be worth considering especially if your fatigue limits your life no cure mind you so still have to get on and make the most of things wish you the best
  4. O

    Symptoms for over a year now with no diagnosis

    consider mitochondrial disease weakness and nausea diagnosed by muscle biopsy
  5. O

    Fourth EMG - Update

    Blue dog its my understanding that large mups are a sign of denervation and reinervation- you have very little spontaneous activity - why couldn't a virus have damaged yours nerves- why does it have to be als. It may be - I hope its not
  6. O

    steve had muscle biopsy . they say have mitochondrial disease - explains weakness bits of trophy...

    steve had muscle biopsy . they say have mitochondrial disease - explains weakness bits of trophy and emg - mito cocktail may help and exercise - - you might want to ask for biopsy too- not great but better to know
  7. O

    Newly Diagnosed.

    tracy im sorry and thinking about you x
  8. O

    hi just wondered how you are - need a hand? mags

    hi just wondered how you are - need a hand? mags
  9. O

    It's been 8months...

    I have this , lack of strength in my hands and arms but its mitochondrial disease there are many many things that can cause weakness. try not to worry best wishes to you mags
  10. O

    Third EMG abnormal

    yes so did I but the biopsy said mitochondrial disease and if polyphasic units are mups, they were long duration. I think in chronic muscle conditions they can be long. there was no fibre grouping in biopsy so they said no als - no spontaneous activity on emg either and a 4 year story ...
  11. O

    Third EMG abnormal

    I had 3 normal emgs then 1 showing polyphasic units - a muscle biopsy showed mitochondrial disease- its not always als!
  12. O

    Twitches everywhere, weak arms - Help!

    I worried about als for 3 years - had weakness and twitching- I was so distressed they told me to see a shrink who gave me various drugs to convince me that I wasn't ill. I was ill I have mitochondrial disease. But my als worrying did me no good - Infact the drugs they gave me are bad for mito ...
  13. O

    Newbie : Als symptoms?

    just read weak signal is connected to myelin problems. im not a doctor but might help you good luck
  14. O

    hi just wondering how you are and comparing notes I have mild atrophy in feet, cant walk very...

    hi just wondering how you are and comparing notes I have mild atrophy in feet, cant walk very far 15 mins recently both hands look flat skin tight and weaker emg shows polyphasic units long duration but only a few fasciulations. I had slightly raised protein in spinal fluid and blocked evoked...
  15. O

    ALS or cervical stenosis?

    Johnny you make perfect sense and unlike most neuros your willing to try and make sense for no fee at all - god bless
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