ORGirl1970

Hi - was just reading your posts with Miss. My husband is also a vet and he also had IVIG treatments which were awful. We have been searching for a diagnosis for a long time. He finally was told he has Brachial Amyotrophic Displygia B.A.D., a variant of ALS. He just went through the claims process at the VA this summer. We had a PVA rep who was tremendous. Tom saw the neuro at the VA (the same one he sees privately at Duke) on 8/23 and was approved by the end of the day for 30 percent. He has almost the loss of use of his left arm but not quite. I guess when that happens the percentage increases.

It feels good to share with others who know what you and your family are dealing with on a daily basis!

Mary

Just wanted to say hello. We live in Memphis. My husband was diagosed on 4/16/10. His progression sounds unbelievably similar to your husbands. He even had 3 IVIG treatments Feb./Mar.,/Apr. The last one sent him over the edge and the progression came on at warp speed. He had to go on short term disability before he even got the ALS diagnosis. I know what you mean about too much time to think. We've been living that for over 4 months.

The forum is a wonderful place to gather information. Also, don't hesitate to contact me or anyone else individually if you have specific questions. I don't think I could survive without these folks.