Recent content by OregonRNDad

  1. O

    How do you balance being mindful of possible onset and keeping anxiety in check?

    Thank you.
  2. O

    How do you balance being mindful of possible onset and keeping anxiety in check?

    Again Nikki, great insight. My Mother's testing just came back. Showed C9orf72 repeats detected within normal range. And of greater interest, KIF5A c.3020G>T (p. Arg1007Met). I am still looking into this. It is listed as a Variance of Uncertain Significance (VUS). But what i have been able to...
  3. O

    How do you balance being mindful of possible onset and keeping anxiety in check?

    That is great insight. Thank you. I have read so many threads on here where people are pushing and pushing with a "are you sure this isn't ALS?" kind of mentality when it is so very clear it is not. I want so desperately not to be that way or even come across that way. I am grateful for the...
  4. O

    How do you balance being mindful of possible onset and keeping anxiety in check?

    My question is to those familial ALS members both diagnosed and undiagnosed on how you keep an eye out for symptoms, but keep anxiety in check? My mother was diagnosed in March 2015 and thankfully has been progressing slowly. Her mother lived for 13 years from diagnosis. Other family members...
See more
Back
Top