Recent content by OregonGirl

  1. O

    Muscle wasting?

    HI Laurie, No I was not gutsy enough to ask for a referral to OHSU. Didn't want to hurt his feelings - how ridiculous huh? Plus my husband is just so over all of this as I can imagine you all are too. Not to say he isn't 100% supportive and understanding. He wants me to be well, so he and my...
  2. O

    Muscle wasting?

    Kim - Not taking Prozac at night anymore. He started me back on Gabapentin at nigh for pain so took one last night. Stress/anxiety - yes I guess your body can't just sleep through that can it. I am waiting for it all to "even out" and things to stop progressing/changing. For the twitches to...
  3. O

    Muscle wasting?

    Yes it was not put in nice columns just one big paragraph that I did my best to make somewhat readable. The weird thing is if I put into a columnar form, the +1's and +2's (which I guess are the indications of abnormal ranges) do not necessarily fall into the column that the doctor said has...
  4. O

    Muscle wasting?

    Yes it all sounds good when he says its an Ulnar Nerve Injury Just got the report and it states EMG Summary Table Spontaneous MUAP Recruitment Muscle Nerve Roots IA Fib PSW Fasc Other Amp Dur. PPP Pattern L. Tibialis anterior Deep peroneal...
  5. O

    Hi Sean, I am going through some things that are very similar to your story. Is there anyway I...

    Hi Sean, I am going through some things that are very similar to your story. Is there anyway I can private message you? Thanks ~OG
  6. O

    Hi Laurie - I posted an update to my last thread. Unfortunately my appt yesterday just added...

    Hi Laurie - I posted an update to my last thread. Unfortunately my appt yesterday just added more questions and confusion to my story at this point. Take Care ~OG
  7. O

    Muscle wasting?

    Greetings again. Just an update - more confusion really. First EMG/NCS to determine cause of foot drop in August indicated nerve injury at fibular head. Both October 5th and October 23rd EMG and NCS that showed all was well (except that pesky Peroneal Nerve (R) at fibular head and Tibialis...
  8. O

    Again Laurie thanks for the reply. I have another round of EMG tests tomorrow and hope I am...

    Again Laurie thanks for the reply. I have another round of EMG tests tomorrow and hope I am reassured. Depending on the results I will discuss the "where we go from here" with the Neurologist including getting input from a clinic that has a more broad range of experience with neurological...
  9. O

    Hi Laurie, I wanted to just say thank you for replying knowing that I am in such a state of...

    Hi Laurie, I wanted to just say thank you for replying knowing that I am in such a state of limbo. If you have any specific suggestions as to what I should be talking to my neurologist about I would love to hear them. Although other members have assured me as to "not having ALS" it still...
  10. O

    Muscle wasting?

    Hi Laurie - EMGs to date all normal/clean. I've seen three neurologists, (4 if you count one who did emg/ncs to diagnose peripheral nerve damage in August, 5 if you count Neurosurgeon I was first referred to for foot drop) I have had many tests - extensive blood work twice, MRIs (brain...
  11. O

    Muscle wasting?

    Thanks Kim. I am trying Valium at night so I can sleep through the pain (which has been an issue too). Although the pain is still there all day. I need something for anxiety that will actually let me function while awake. Although I do agree I am experiencing anxiety (oh boy am I ;-)) - it is...
  12. O

    Muscle wasting?

    Hi Vincent! July 13th - I was fine as frog hair July 14th - I had surgery, was in oxcodone fog for three days , July 16th - I decided I had enough of that and switched to advil and ice July 17th - I mentioned to my husband my right side felt weak. July 20th - I resumed my one hour a day...
  13. O

    Muscle wasting?

    Re: Insight appreciated Thanks Mike - Read those way back when. Maybe I really did not process them so will read again. It's tough not to have fear and loathing for the unknown......especially when I see and feel those twitches and buzzes all over and specifically in the hand muscles that are...
  14. O

    Muscle wasting?

    Greeting all! Just a quick post as I need some support. I posted last fall regarding my symptoms and test results..... https://www.alsforums.com/forum/do-i-have-als-als/30480-insight-appreciated.html Sine then I have found a neurologist I really really like. Saw him December 1 and he said "...
  15. O

    Insight appreciated

    Atsugi - Thanks Bunches for the reply! Clarification, the weight loss was way before going to Mayo. In fact it happened in about one month between July and August. I have gained some back but mostly in my mid section (unfortunately a high carb diet will do that - but I'm afraid to go back to my...
Top