Recent content by orangeherring

I've been unable to find any information about the Muscular Dystrophy Association on this forum, but I think they're worth pointing out. The MDA leads the way in research for some 40 different muscular dystrophy diseases (including ALS). I'd imagine if the MDA helped find a cure for one of...

Thank you for your responses. In learning about such a mysterious disease, it can be seductive to come up with pet theories. I don't know how doctors collect data about ALS, but I feel as though they don't know enough. It would be nice if there were a database of information for patients to...

This is my first post on this web site. I am deeply moved by the experiences I have read on this forum and by the outpouring of support provided by the individuals here. In my limited research of ALS, I have noticed that many of the people diagnosed are seemingly of normal weight, or at least...