olly

Hi Caroline! How are you doing lately? Just thought I would check in and see how you are doing. We are starting into the rainy season, just before the snow. But the temps have been pretty warm for this time of year so we are not suffering too much yet. Take care dear one! HUGS, Joyce

Not good news Caroline...have to bring wife next time...he's called it anterior horn cell disorder...we all know what he means,,,,

..things happen in threes...while in the same dept today with my wife and her possible chromes..offered another cancelation neuro appt for friday but first thing..so can make both appointments...i just hope he isn't going to brush me off for a couple of months to get the whole six month progression..may have an update at the weekend.. Take Care Caroline..thanks.x

Hi Caroline..hope this finds you well this morning . A little update that i don't want to post..Annoyingly yesterday afternoon i had to turn down a cancelled appt with my neuro for this friday..as sods law yesterday morning we were offered a appt with the fertility clinic on the same day...Given the choice babies win every time..maybe have some good news before Christmas..my wife will make a brilliant mother..can't wait

Hi Caroline, hope alls well with you?
I just signed in this morning to a weird message from a loopy. Thank you for reporting her to David. Veeeery creepy that people are hitting on others like this. I think I am pretty naive. Imagine if you gave them your email! Arghhhh.

I am doing ok. Pretty well, actually. Thanks for asking. I have the best possible situation: Family caregivers, an accessible home, and the resources to acquire what i need. I was diagnosed last year, but i had panicked about it for months before, so i really feel for some people on the DIHALS forum.

Your posts are always so kind. I appreciate that. Thank you.

HI Love muffin

I am doing ok. I won't bother you on your lazy day except to say I love you.
Vicki

Hi Caroline, I will be getting app in a couple weeks. But you know what, for me, this week has been really spiritual in the fact that, despite not getting the definite dx yet, i'm fairly calmed. Can call me crazy but i'm finally understanding what life is all about..

For instance, yesterday i comforted a friend who was close to a wonderful guy that lots of people knew and recently died from an asthma attack.. the guy being in his 30s.. Yet he was so involved in many things that people were, indeed, grieving but at the same time, were happy for the moments they had with him...

So what i'm saying is that i'm really understanding our purpose in life. Until now, i have wasted so much time and haven't been that productive as i though life was a long ride... But heck, you don't know when that ride is over...

So pretty much, i think i'm living well for the moment lol

Jon..

Hi Caroline! My trip went well and I was glad to get back home. Traveling by plane is getting harder and harder for me as it gets more difficult to walk even short distances (like from the door of the plane to my seat). But I love to travel and will till I can't anymore I suppose. The jaw is some better, but still hurts when I chew and is stiff to open. I get really fatigued at chewing so I am noticing me swallowing small chunks of food rather than chewing. My appetite is not what it use to be, but I can loose the poundage! It was hot in Idaho, but home is just right. Perfect weather. I hope you are doing well sweets! Everything doing all right with you? Hugs!

I added a few new pics.

Love ya
Vicki

Hey Sweetie,

I'm sorry--I haven't been on much at all. Some things that were said made me decide I shouldn't be here, so have stayed away. I found a message from someone on my writing page on FB telling me to come find you~ I'm so sorry! I didn't mean to worry anyone. HOw are you? I'll check in at least weekly to say hi and chat with the friends I have here HUGSSSSSS

Hello my little sugar cube. I hope you have a great day. I love you more than words can express.

part 2...
I am still having problems with pain on my upper right abdomin side. The pain is constant and at times can get pretty uncomfortable, but there is nothing that I can do with no insurance. I don't mention it much to my husband or anyone. Basically no sense in making anyone worry. I basically have given it to God and he knows what he is doing and allowing in my life. He will provide all my needs and I will not worry about this. Too much to do!

Sorry to hear about your stresses with neighbors and family. I am with you on that we can do without all the dramatics in our lives. It does make us worse doesn't it! I hope your weather is plesant and you do find time to go out and lay in the sun/shade to enjoy the outdoors! Thank you for your message as it perked up my day! Hugs to you too, Joyce

Hi Caroline! Doing ok here. Really enjoying our heat wave of 70f + temps! The warmer weather keeps the tightness down somewhat, but I still fatigue just as always. I lay out on the deck in the sunshine instead of inside the house. When I am on the deck in the sun, I can close my eyes and pretend I am on a private deck of a yaht or cruiseship somewhere! All I need is some ocean noises and sea breeze air freshener and I am sure it will really seem I am there! HA!

I will be heading off to Vancouver Canada next week for 6 days by myself. This should be an adventure. It will be the first business trip I do alone in a foreign country. I am a little nerveous but very excited at the same time! Lots of ship inspections and travel agent lectures. I should be very busy yet exhausted by days ends. We bought new batteries for my pwc because it was burning out so quickly, so hopefully there will be no issues of having to stay by a power source all the time!
to be continued....