olly
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  • Hello Olly!
    Thanks for friending me. I looked at your family pictures. Looks like a lovely family. So you were diagnosed in 2007? You are a miracle! So how has your faith helped you get through this? I love to hear others testimonies. Today has been a rough day for me as a caregiver. Its overwhelming sometimes. But i took a calming bath and talked to my Jesus. Feeling better. Isnt it amazing that the god of the universe hears our tinyest whisper. He is always there when we need Him! Well, tell me more about yourself! Your "about me" said arts and crafts...What kinds of arts and crafts do you enjoy?
    Thank you for the warm welcome. I'm always happy to meet another cat person. I found that picture online, sadly those aren't mine. My cat's name is Felix. I rescued him two years ago and he is truly my guardian angel. Best wishes and a Happy New Year! ~ James
    Just want to wish you a merry Christmas and happy new year...You are an inspiration to me and so many here!
    Hi Caroline! I hope you are doing well for the holidays and keeping warm. We had an awesome trip through the Panama and it took me quite some time to recuperate. Now that I have, there is tons of things to do and no energy to do them. But I will endure the best I can. The shortest day of the year was 2 days ago at 4 hours of sunlight. So now we gain about 1 and a half minutes a day! Lots of snow out there, although it came late this year. So hoping it doesn't stay late like it did last year! I wanted to wish you a very Merry Christmas! take care! Hugs!
    I will say a prayer for you both. My mom looked terrible after her heart surgery. It was very scary. I am sure she will be better after a couple days.
    I have emailed David. It's very weird - or it is something i am doing incorrectly. Neophyte that I am. Hope to gear from him soon, as several members are asking. Seems ever since the site went down a few weeks ago...
    Hi Caroline! I am doing as well as can be expected. Our temps have been warmer than usual, but yes its getting darker out. The sun is down by 4pm now and up about 9am. We are heading out starting next week to go on a cruise through the Panama canal and will celebrate our 30th anniversary during the trip. I am excited as always and glad I can still do this.

    I hope all is well with you and your still able to get out on occasion.
    Take care and Hugs!
    Hi Caroline! I'm 27 years old. Twitching started late July body wide... I have had normal blood work, spinal tap, and my MRI had a few leisions on my brain. I have brisk reflexes but no babinski or jaw jerk, and a normal gag reflex. I had an emg almost a month after onset of symptoms which was clear. Both limbs, arms, butt, and para spinal wee all clear no fasics or fibs. A week later I felt a lump in my throat I called my dr he agreed to do an emg of my tongue, he also did a weird muscle under my shoulder blade ( he said not to laugh bc it was near my lungs ?!) and my jaw. All clear. I have had a few almost choking like experiences... Like my water almost went down the wrong way but I could still drink. I also want to mention the body wide twitching happened after a case of food poisoning, and bc i consulted Dr. Google. My fear started after reading the clean emg but I have bulbar. Could this be my case?!
    Morning Caroline..I'm more puzzled than normal..had a neuro nurse phone yesterday to see how i was following diagnosis?? I thought he was suggesting A.l.s...??anyhoo re fertility.. just waiting for the 25th, i have to provide another sample, then we can get the hormone pills for six months, see if that works before i.v.f....we have had one offer of a surrogate and her auntie may pay for a round of ivf as Doris is bit overweight to be allowed on the nhs...try to focus Doris's thoughts on that rather than the other and get a sense of normality again..Off touring Norfolk today to see friends and family:)
    Olly, that's so funny, that puts a smile on my face because I love people with a good sense of humor! I'll be checking back to see what you will do next! lol, btw thanks for responding to my post a few days ago, I understand that it must difficult for PALS to answer and I do appreciate your time.
    Hi Olly I am having touble finding a post I think you were involved in about cycling in PLS (not riding a bike...). can you help me out?
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