Recent content by Olivia

Hello everybody, I hope you don't mind me writing on here, I didn't really know where to put it. This post is a lot different to my others. I would like to thank you all from the bottom of my heart. Secondly, I would like to apologise. I started getting symptoms nearly a year ago today-...

Does anyone have any idea what other thing that could explain my symptoms? I am desperate not to have ALS (not like its my choice). I have an autoimmune skin disorder, are there any autoimmune diseases that could explain it that wouldn't show up on specialised blood tests? is ALS autoimmune? My...

I just want to know whats wrong with me, I can't cope with the "we will have to wait and see how things progress". Why are my muscles atrophying on my left side, muscles constantly jerking, twitching. legs give way, drop things all the time, constant tremor in arms and legs when I move them or...

Just a question for anyone who has had a baby after having a diagnosis, is a natural birth safe? I have been to lots of private neurologists who have confirmed atrophy and think something is wrong and haven't ruled als out but can't do much more until after baby is born. I'm just worried as...

I've had another neurologist appointment who confirmed atrophy on my left side of bum and thighs (they are very obvious), plus left leg felt shaky for some time before and knees always give way. They can't diagnose until another emg and further tests which I am not having until after I deliver...

Are there any tests such as emg that can be done on the face area

?? Anybody so scared

I know but as you know appointments and diagnosis is a long process I just want to know are these symbols consistent with Bulbar als regardless of my body symptoms. At the rate this is lrpgressing and the fact I wake up feeling like I'm choking and excess saliva comes pouring out my mouth and...

Last post- bulbar Sorry to take up time I do appreciate it Has anyone experienced this with onset Eyelids one night unable to shut kept flickering open, now able to shut but still flicker can feel trembling/fascinations at corner of eyes been over a month Moved to nose can't squinch...

Actually I have been tested by a doctor and have a positive babinski reflex and hyperflexia along with signs of damage to facial muscles as they constantly quiver when I use the orbicularis muscle around my eyes and muscles around my nose and mouth these have not been tested. Along with a lot...

Can anyone tell me what else they got tested for before the diagnosis. I'm just afraid brain scans and blood tests have ruled everything else out :( and it definitely isn't benign as its impairing my movement a lot. Thanks for your time even if you feel I am wasting it and obsessed with ALS, I'm...

They are not twitches I wish they were! It's when I use the muscle like close my eyes or scrunch my nose you can feel the muscle constantly fibrillate it doesn't stop ever and now has moved to my mouth when I open it you can feel tiny fibrillations under my skin. They never go, I wish they did...

Re: Happening so fast bulbar and limb onset? I don't understand how anyone can say nothing points to it when I have constant fibrillations in lots of my facial muscles and have slurred speech along with difficulty swallowing and tight throat along with all the limb symptoms and bad weakness...

Re: Happening so fast bulbar and limb onset? Also I have an autoimmune skin condition I've had since 13

Re: Happening so fast bulbar and limb onset? I appreciate the replies I just need some support and my symptoms don't match anything else trust me I've been searching and searching and tested for everything else including MG, would signs of als show up on specialised blood tests? I just don't...